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Immune Deficiency Foundation
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  • HOME
  • ABOUT IDF
    • About IDF
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  • ABOUT PRIMARY
    IMMUNODEFICIENCIES
    • What are Primary Immunodeficiencies
    • Types of Primary Immunodeficiency Disease
    • Publications
  • PATIENTS
    & FAMILIES
    • Bill of Rights for Patients with PIDD
    • Patient Education Programs
    • Peer Support
    • Patient Assistance Resources
    • Health Insurance FAQ’s
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    • USIDNET Patients
    • IDF SCID Initiative
      • IDF SCID Newborn Screening Campaign
    • IDF NEMO Initiative
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    • Locate a Physician
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  • HEALTHCARE
    PROFESSIONALS
    • IDF Medical Advisory Committee
    • IDF Nurse Advisory Committee
    • Consulting Immunologist Program
      • Physician to Physician Consult Request
    • IDF & USIDNET LeBien Visiting Professor Program
    • Continuing Education Course for Nurses
    • USIDNET Healthcare
    • Health Insurance “How to Appeal” Tips
    • Links to Professional Organization
    • Healthcare Professional Contact
  • TREATMENT
    INFORMATION
    • Specific Medical Therapy
    • Immunoglobulin Products
    • Product Recalls and Withdrawals
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  • PHOTO
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  • IDF
    STORE

  • Patient Programs
  • Patient Services
  • Medical Programs
  • Publications

Local Patient Meetings: Education programs featuring local experts and networking opportunities.

Operation Outreach: Patient education meetings designed to strengthen underserved areas.

IDF Retreats: Weekend events for all ages that feature medical and life management sessions.

IDF Youth Programs: Designed for children diagnosed with a PIDD or have a family member with this condition.

IDF Teen Escape: Acquaint teens diagnosed with a PIDD with others like themselves.

IDF National Conference: The world’s largest gathering of families affected by PIDD.

Locate a Physician: Contact IDF to find a physician in your area that is an expert on PIDD.

Peer Support: Speak with someone who understands! Connecting people and patients who share similar relationships to PIDD.

Patient Assistance Resources: Resources and tools provided to help you tackle all of your insurance challenges.

IDF Consulting Immunologist Program: A free service for physicians which provides consults with expert clinical immunologists on issues of diagnosis, treatment and disease management.

LeBien Visiting Professor Program: Promote improved knowledge by providing your faculty with a Visiting Professor with expertise in primary immunodeficiency disease.

Continuing Education Course for Nurses: A free, 5-hour, accredited course for nurses, that provides an update on primary immunodeficiencies, immunoglobulin therapies and the nurse’s role with these therapies.

Medical Advisory Committee Comprised of prominent immunologists to support the mission of the IDF.

Nurse Advisory Committee: Comprised of exceptional nurses to support the mission of the IDF.


Publications: The Immune Deficiency Foundation produces a variety of educational materials for patients and health professionals. All publications are free of charge.

In The News

  • NIH Scientists Find Cause of Rare Immune Disease
    Investigators at the National Institutes of Health have identified a genetic mutation in three unrelated ...
    01-12-2012
  • Man’s Life Saved After Treatment Reinstated
    Robert Durkin’s insurance company had notified him they’d no longer pay for a costly treatment he ...
    01-5-2012
  • Parents’ Past Worry Will Save Delaware Babies’ Lives
    After Child’s Diagnosis, SCID Test is Now a Routine >>> Read More
    01-3-2012
  • Mother Struggles with Insurance Company to Keep Son’s Meds, the Ones that Work
    In an effort to spur awareness of a health care problem affecting many who suffer from immune deficiencies, ...
    12-20-2011
  • Victor Grifols selected as Business Leader of the Year 2011 by the Spain – US ...
    Angeles Gonzalez Sinde, Minister of Cultural Affairs of the Government of Spain, will present this award ...
    12-7-2011
READ MORE

Information

Volunteer
Interested in working with IDF? Donate your time and talents, and join IDF’s nationwide network of dedicated volunteers.
Calendar of Events
Visit the IDF Calendar of Events for more information about IDF programs and meetings, both locally and nationally.
IDF Resources
A compilation of website links and contact information for resources that can be helpful to individuals and families living with PIDD.
IDF Survey Research Center
The Center provides timely data and analysis on issues of importance to the primary immunodeficiency community.
USIDNET
A research consortium established to advance scientific research in the field of primary immunodeficiencies.
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Immune Deficiency Foundation,  40 West Chesapeake Avenue, Suite 308,  Towson, Maryland 21204    Phone: 1-800-296-4433  © 2011 All Rights Reserved.