Publications | Immune Deficiency Foundation

Publications are available for immediate download (PDF) or by ordering a hard copy.

The Immune Deficiency Foundation produces a variety of educational materials for patients and healthcare professionals. All publications can be downloaded and printed. Alternatively, you can order a hard copy (if it is available) by clicking on the publication check box and clicking the "Request Hard Copy" button. Request Hard-Copies for Selected Publications

Categories:

IDF Patient & Family Publications IDF Healthcare Professional Publications IDF Communications IDF Awareness Materials Fundraising Materials IDF Surveys Other Reference Materials

IDF Patient & Family Publications

Patient & Family Handbook for Primary Immunodeficiency Diseases 4th Edition

This handbook contains comprehensive information about the diagnosis and treatment of primary immunodeficiency diseases and much more. Available in Spanish and French. NEW 5th Edition will be available June 2013.

Available for download only. Reserve a copy of the 5th edition: IDFHandbookWaitList@primaryimmune.org.

Our Immune System

This storybook educates children about primary immunodeficiency diseases through delightful, eye-catching illustrations. The characters explain how the immune system works and describe the treatments for pediatric patients. Children will understand ...

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Nuestro Sistema Inmunologico

The Spanish version of the Our Immune System storybook educates children about primary immunodeficiency diseases through delightful, eye-catching illustrations. The characters explain how the immune system works and describe the treatments for ...

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IDF School Guide Information about Students with Primary Immunodeficiency Diseases

This guide is a valuable reference for parents and school personnel, including administrators, teachers and nurses. It contains key medical points about primary immune deficiency diseases and associated special needs, legal rights of children with ...

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Bill of Rights for Patients with Primary Immunodeficiency Disease

The Bill of Rights for Patients with Primary Immunodeficiency Disease lists all the rights and expectations for PIDD patients regarding Medical Information, Choice of HealthCare Provider, Involvement in Healthcare Decisions, Fair Treatment and ...

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IPOPI Booklets

The International Patient Organisation for Primary Immunodeficiencies (IPOPI) 6 booklets in 5 languages.

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What does an abnormal screen for SCID mean? – A quick guide for parents

Newborn Screening for Severe Combined Immunodeficiency (SCID) and Conditions Associated with T Cell Lymphopenia, A Guide for Parents who receive an Abnormal Screen.

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SCID: A Parents Guide

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IDF Presents: Battle of the Bands (Comic Book)

Are you a fan of In Tune with Your Immune System, IDF’s popular teen-friendly video comparing the human immune system to a rock band? Check out the comic book version: IDF Presents: Battle of the Bands!

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IDF Healthcare Professional Publications

IDF Diagnostic & Clinical Care Guidelines for Primary Immunodeficiency Diseases 2nd Edition

Guidelines developed by expert immunologists to enhance earlier diagnosis, improve health outcomes and increase access to specialized healthcare and optimal treatment for patients with primary immunodeficiency diseases. The guidelines include ...

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2012 IDF Guide for Nurses

IDF Guide for Nurses Immunoglobulin Therapy for Primary Immunodeficiency Diseases 3rd Edition

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Infants with SCID should NOT receive Live Rotavirus Vaccine

IDF SCID Initiative with SCID, Angels for Life Foundation has undertaken the development and distribution of the Live Rotavirus Vaccine brochure to warn health care providers about the dangers of administering the Live Rotavirus vaccine to infants ...

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Clinical Update in Immunoglobulin Therapy for Primary Immunodeficiency Diseases

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Subcutaneous IgG Therapy in Immune Deficiency Diseases

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Primary Humoral Immunodeficiency Optimizing IgG Replacement Therapy

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The Clinical Presentation of Primary Immunodeficiency Diseases

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Treatment and Prevention of Viral Infections in Patients with Primary Immunodeficiency Diseases

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IgG Subclass Deficiency

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Immunization Of The Immunocompromised Host

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Consulting Immunologist Program Postcard

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IDF & USIDNET LeBien Visiting Professor Postcard

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IDF Online Continuing Education Course for Nurses Postcard

This free, accredited course enhances the knowledge of the nurse clinician by providing an update on primary immunodeficiency diseases, immunoglobulin therapies and the nurse’s role with these therapies.

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IDF Communications

IDF Advocate

Stay connected with the IDF ADVOCATE Newsletter published three times a year. The IDF ADVOCATE is mailed to over 20,000 patients, family members, physicians, nurses, industry, government and interested individuals.

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Primary Immune Tribune

Primary Immune Tribune is e-newsletter of the Immune Deficiency Foundation.

IDF Community In Action Blog

IDF Community In Action is a blog for all members of the primary immunodeficiency community to share information about their IDF activities. This blog celebrates all the ways that individuals are making a difference in the IDF Community.

IDF Policy Matters Blog

Policy Matters is a blog designed to inform individuals in the primary immunodeficiency community about important policy issues that directly impact patients with immunodeficiency disorders.

IDF SCID Newborn Screening Blog

The Immune Deficiency Foundation’s Blog for newborn (SCID) severe combined immunodeficiency and the establishment of screening programs in all 50 states.

IDF Challenge

The IDF Zebra Challenge blog is for all members of the primary immunodeficiency community to tell how they took the IDF Zebra Challenge and raised funds for IDF. It is a place to share your ideas and successes and help inspire others to take the ...

IDF Plasma Center Partners

The IDF Plasma Center Partners Blog is a place to share information about IDF activities in plasma collection centers. This blog celebrates all the ways that our partners – volunteers, plasma donors and participating plasma centers are making a ...

IDF Awareness Materials

IDF Brochure

For distribution to the general public for awareness of primary immunodeficiency diseases and services provided by IDF. IDF services, materials and programs are outlined in the brochure. The brochure also covers basic information on symptoms of ...

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Is It Just An Infection Awareness Flyer

Perfect for bulletin boards in physicians’ offices, schools or other public places that will catch the attention of people in the community, this flyer cautions people to be suspicious if they have an infection that is recurrent, persistent, ...

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IDF Info Card

For distribution to the general public for awareness of primary immunodeficiency diseases and services provided by IDF. The info card covers basic information on symptoms of primary immunodeficiency diseases.

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Is it just an infection Business Card Size

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IDF Teen Program Brochure

Exclusively for teens diagnosed with a primary immunodeficiency disease. The program promotes friendship, provides education and peer support, builds leadership skills, and encourages teens to live life to the fullest.

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Primary Immunodeficiency Awareness Media Kit PDF ONLY

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eHealthRecord Brochure

The IDF eHealthRecord is a one of a kind electronic personal health record developed for individuals and families living with primary immunodeficiency diseases.

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Fundraising Materials

Think Zebra Fundraising Kit

What better way to raise funds and promote awareness of primary immunodeficiency diseases, while helping to save lives! Money raised will help fund patient and physician education and awareness.

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Blue Jeans for Healthy Genes Kit

Help your company or organization host Blue Jeans for Healthy Genes Event with these simple steps and resources.

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IDF Surveys

IDF National Survey of Patients (1995)

In 1995, IDF undertook the first national survey of the state of primary immune deficiency diseases in the United States. The survey had a number of objectives. First, the survey sought to provide an estimate of the general magnitude of primary ...

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IDF National Survey of Patients (2002)

In the fall of 2002, IDF undertook the second national survey of the state of primary immune deficiency diseases in the United States. This survey was designed to supplement the 1996 survey is nearly identical in its content to that first survey. ...

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IDF National Survey of Patients (2007)

IDF undertook the third national survey of the state of primary immunodeficiency diseases in the United States in the fall of 2007. This survey was designed to build on the work done in the 1996 and 2002 surveys. Over 1,350 persons with a diagnosis ...

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IDF National Immunoglobulin Treatment Survey (2002)

In 2003, IDF released its first report on the Treatment Experiences and Preferences among Patients with Primary immunodeficiency Diseases. The survey addressed a number of issues including the characteristics of patients using immunoglobulin, ...

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IDF National Immunoglobulin Treatment Survey (2008)

In the fall of 2008, IDF undertook the second national survey of the state of primary immune deficiency diseases in the United States. This survey was designed to supplement the 1996 survey is nearly identical in its content to that first survey. ...

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IDF Hospital Usage of Intravenous Immunoglobulin (2006)

This report presents results from a survey of based upon 310 telephone interviews with pharmacy directors at hospital pharmacies which dispense IVIG. The sample was randomly selected from U.S. hospitals with 100 or more beds hospital pharmacies ...

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IDF Patient Immunoglobulin Access Survey (2006)

The Immune Deficiency Foundation (IDF) conducted a national survey of patients with primary immune deficiency diseases (PIDD) in order to determine the extent to which Medicare patients and other PIDD patients have experienced differences in ...

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IDF Immunologist Immunoglobulin Treatment Survey (2006)

The Immune Deficiency Foundation, in collaboration with, American Academy of Asthma, Allergy and Immunology (AAAAI), conducted a national survey of the AAAAI membership concerning the treatment of patients with primary immunodeficiency (PIDD) ...

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