Patient & Family Handbook Spanish Version

IDF Manual Del Paciente Y La Familia

This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

Table of Contents

Capítulo I El Sistema Inmune y las Enfermedades de Inmunodeficiencias Primarias

Capítulo II Agammaglobulinemia Ligada al X

Capítulo III Inmunodeficiencia Común Variable

Capítulo IV Deficiencia Selectiva de IgA

Capítulo V Inmunodeficiencia Combinada Severa

Capítulo VI Enfermedad Granulomatosa Crónica

Capítulo VII El Síndrome de Wiskott Aldrich

Capítulo VIII El Síndrome Hiper IgM Ligado al X

Capítulo IX El Síndrome DiGeorge

Capítulo X Deficiencia Subclase IgG

Capítulo XI Ataxia – Telangiectasia

Capítulo XII Herencia

Capítulo XIII Cuidado General

Capítulo XIV Terapia Médica Específica

Capítulo XV Niños, Adolescentes y las Enfermedades de Inmunodeficiencia Primarias

Capítulo XVI Los Adultos y las Enfermedades de Inmunodeficiencias Primarias

Capítulo XVII Seguros Médicos para Inmunodeficiencias Primarias: Tomando el Control

Glosario

Recursos Información Acerca de Inmunodeficiencias

Lista de Lecturas

COPYRIGHT 1987, 1993, 2001, 2007 IMMUNE DEFICIENCY FOUNDATION

Produced For Patients and Families by IDF, The National Organization Devoted To Research And Education For The Primary Immune Deficiency Diseases.

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This publication has been made possible through a generous grant from Baxter Healthcare Corporation