Patient & Family Handbook

For Primary Immunodeficiency Diseases, 4th Edition

This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

Patient Family Handbook – (download the complete book)

Table of Contents

Editors and Contributors & Preface

Chapter 1 The Immune System and Primary Immunodeficiency Diseases

Chapter 2 Common Variable Immune Deficiency

Chapter 3 X-Linked Agammaglobulinemia

Chapter 4 Selective IgA Deficiency

Chapter 5 Severe Combined Immune Deficiency

Chapter 6 Chronic Granulomatous Disease

Chapter 7 Wiskott-Aldrich Syndrome

Chapter 8 Hyper IgM Syndrome

Chapter 9 DiGeorge Syndrome

Chapter 10 IgG Subclass Deficiency and Specific Antibody Deficiency

Chapter 11 Ataxia Telangiectasia

Chapter 12 Hyper IgE Syndrome

Chapter 13 Complement Deficiencies

Chapter 14 Other Important Primary Immunodeficiency Diseases

Chapter 15 Inheritance

Chapter 16 Laboratory Tests

Chapter 17 General Care

Chapter 18 Specific Medical Therapy

Chapter 19 Infants and Children with Primary Immunodeficiency Diseases

Chapter 20 Adolescents with Primary Immunodeficiency Diseases

Chapter 21 Adults with Primary Immunodeficiency Diseases

Chapter 22 Health Insurance

Glossary

Resources

COPYRIGHT 1987, 1993, 2001, 2007 IMMUNE DEFICIENCY FOUNDATION

Produced For Patients and Families by IDF, The National Organization Devoted To Research And Education For The Primary Immune Deficiency Diseases.

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This publication has been made possible through a generous grant from Baxter Healthcare Corporation