HOME
ABOUT IDF
ABOUT PRIMARY
IMMUNODEFICIENCIES
PATIENTS
& FAMILIES- Patient Insurance Center
- Bill of Rights for Patients with PIDD
- Patient Education Programs
- Peer Support
- Health Insurance FAQ’s
- Scholarship Programs
- USIDNET Patients
- IDF SCID Initiative
- Get Connected with IDF!
- IDF NEMO Initiative
- Clinical Trial Information
- Locate a Physician
- Ask IDF
- Volunteer for IDF
- IDF eHealthRecord
- IDF Kids Connection
HEALTHCARE
PROFESSIONALS- IDF Medical Advisory Committee
- IDF Nurse Advisory Committee
- Consulting Immunologist Program
- IDF & USIDNET LeBien Visiting Professor Program
- Continuing Education Course for Nurses
- Video Series For Nurses
- USIDNET Healthcare
- Health Insurance “How to Appeal” Tips
- Links to Professional Organization
- Healthcare Professional Contact
TREATMENT
INFORMATION
PHOTO
GALLERY
IDF
STORE
Patient & Family Handbook
For Primary Immunodeficiency Diseases, 4th Edition
This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.
Patient Family Handbook – (download the complete book)
Table of Contents
Editors and Contributors & Preface
Chapter 1 The Immune System and Primary Immunodeficiency Diseases
Chapter 2 Common Variable Immune Deficiency
Chapter 3 X-Linked Agammaglobulinemia
Chapter 4 Selective IgA Deficiency
Chapter 5 Severe Combined Immune Deficiency
Chapter 6 Chronic Granulomatous Disease
Chapter 7 Wiskott-Aldrich Syndrome
Chapter 8 Hyper IgM Syndrome
Chapter 9 DiGeorge Syndrome
Chapter 10 IgG Subclass Deficiency and Specific Antibody Deficiency
Chapter 11 Ataxia Telangiectasia
Chapter 12 Hyper IgE Syndrome
Chapter 13 Complement Deficiencies
Chapter 14 Other Important Primary Immunodeficiency Diseases
Chapter 15 Inheritance
Chapter 16 Laboratory Tests
Chapter 17 General Care
Chapter 18 Specific Medical Therapy
Chapter 19 Infants and Children with Primary Immunodeficiency Diseases
Chapter 20 Adolescents with Primary Immunodeficiency Diseases
Chapter 21 Adults with Primary Immunodeficiency Diseases
Chapter 22 Health Insurance
COPYRIGHT 1987, 1993, 2001, 2007 IMMUNE DEFICIENCY FOUNDATION
Produced For Patients and Families by IDF, The National Organization Devoted To Research And Education For The Primary Immune Deficiency Diseases.
Readers may redistribute this article to other individuals for non-commercial use, provided that the text, html codes, and this notice remain intact and unaltered in any way. The Patient & Family Handbook may not be resold, reprinted or redistributed for compensation of any kind without prior written permission from Immune Deficiency Foundation. If you have any questions about permission, please contact: Immune Deficiency Foundation, 40 West Chesapeake Avenue, Suite 308, Towson, MD 21204, USA; or by telephone at 1-800-296-4433
Usage of this site constitutes your understanding and acceptance of the IDF Disclaimer.
This publication has been made possible through a generous grant from Baxter Healthcare Corporation














