Use social media to promote awareness and share basic information about primary immunodeficiency.
Log into IDF Friends and connect with others living with primary immunodeficiency diseases in discussion forums and groups.
Share your story with your own video at IDF Reel Stories.
Make sure you follow IDF on your favorite social media platform and share our posts with your followers. Use hashtags in your own posts to generate awareness: #piawareness #thinkzebra #zebrastrong #primaryimmune #WPIW #WorldPIWeek
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Samples – Facebook
Primary immunodeficiency diseases (PI) are a group of more than 300 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. While not contagious, these diseases are caused by hereditary or genetic defects. Some types affect a single part of the immune system; others may affect one or more components of the system. #piawareness #thinkzebra
April is National Primary Immunodeficiency Awareness Month, and World PI Week is April 22-29. Help spread awareness about these rare, chronic diseases. #piawareness #worldpiweek
THINK ZEBRA! In medical school, many doctors learn the saying, “when you hear hoof beats, think horses, not zebras,” and are taught to focus on the likeliest possibilities when making a diagnosis, not the unusual ones. However, sometimes physicians need to look for a zebra. Patients with primary immunodeficiency diseases are the zebras of the medical world. So the IDF says THINK ZEBRA! #thinkzebra #piawareness
Samples – Twitter
It’s National Primary Immunodeficiency Awareness Month! Help bring awareness to the PI community. #piawareness
Did you know that there are more than 300 different types of primary immunodeficiency diseases? http://bit.ly/1MHCL5c #piawareness #thinkzebra
Approx. 250K people in the U.S. are diagnosed with primary immunodeficiency. Thousands more go undetected #piawareness #primaryimmune
#thinkzebra – Sometimes physicians need to go against the norm & look for a zebra, not a horse #piawareness #zebrastrong