Professional Organization Resources

Professional Organizations
Federal Organizations

Professional Organizations

American Academy of Allergy, Asthma, and Immunology (AAAAI):
www.aaaai.org
Physician Referral: (800) 822-2762

AAAAI is a professional organization for physicians who treat patients with allergies, asthma and immunology disorders. AAAAI provides physician education and advocacy and a worldwide physician referral system.

Clinical Immunology Society (CIS):
www.clinimmsoc.org

The Clinical Immunology Society, established in 1986, is a professional organization devoted to fostering developments in the science and practice of clinical immunology.

European Society for Immunodeficiencies (ESID):
www.esid.org

ESID, a non-profit organization, aims to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases and promote research on causes, mechanisms and treatment of these disorders.

Federation of Clinical Immunology Societies (FOCIS):
www.focisnet.org

The Federation of Clinical Immunology Societies (FOCIS) was created to provide a scientific forum to foster the cross-disciplinary approach required to understand and treat immune-based diseases as the discipline of clinical immunology evolves. FOCIS has 21 Member Societies and 6 Affiliate Societies, representing roughly 30,000 clinician scientists.

Infusion Nurses Society (INS):
www.ins1.org

The Infusion Nurses Society exists to promote excellence in infusion nursing through standards, education, advocacy and outcomes research.

LAGID: Latin American Group for Primary Immunodeficiencies:
www.boletin-lagid.Isumc.edu

A professional organization comprised of physicians from various Latino countries who are dedicated to promoting the awareness, diagnosis and treatment of primary immune deficiency diseases in these countries.

Pan American Group for Immunodeficiency (PAGID):
www.clinimmsoc.org/pagid

PAGID is an alliance of physicians and scientists with an interest in the diagnosis and treatment of patients with primary immunodeficiencies. The group was formed in 1996 to provide a forum for collaborations and the exchange of information among colleagues. Most members of PAGID are associated with academic centers in North, Central or South America.

Federal Organizations

Centers for Disease Control and Prevention
www.cdc.gov

The Centers for Disease Control and Prevention (CDC) is recognized as the lead federal agency for protecting the health and safety of people – at home and abroad, providing credible information to enhance health decisions, and promoting health through strong partnerships.

CDC National Immunization Program
www.cdc.gov/nip/

This division of the CDC provides information on general vaccinations and specific precautions for individuals affected with primary immune deficiencies.

Center for Biologics Evaluation and Research, FDA
www.fda.gov/cber/index.html

A division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. This agency provides information on biological products, such as blood and plasma, including new product approvals, adverse events, product recalls and withdrawals.

Centers for Medicare and Medicaid Services:
www.cms.hhs.gov

This organization is the federal agency that administers Medicare, Medicaid and the State Children’s Health Insurance Program (SCHIP). The website provides information on these programs and contains the initiatives put out by the Department of Health and Human Services such as the “Health Insurance Portability and Accountability Act.” It also lists the state health insurance commissioners, which can be helpful in seeking health insurance assistance.

National Institute of Allergy and Infectious Diseases (NIAID):
www.niaid.nih.gov

This organization is a division of NIH that provides information about allergy and infectious diseases, and primary immune deficiencies to the public.

National Institutes of Health (NIH)
www.nih.gov/health

This organization provides information on a national level about the advances in health, science and medical issues.

NIH Clinical Trials
www.clinicaltrials.gov

The website contains current information on clinical trials in the United States.

National Institute of Child Health and Human Development (NICHD)
www.nichd.nih.gov

A division of the NIH that provides general information on children’s health issues, including an in-depth booklet on primary immune deficiencies.

U.S. Department of Health and Human Services (HHS)
www.dhhs.gov

This organization is the U.S. government’s principal agency for protecting the health of all Americans and providing essential human services. The web site contains information on the departments numerous federal programs.