Professional Organization Resources



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National Organizations

American Academy of Allergy, Asthma, and Immunology (AAAAI)

www.aaaai.org
313-371-8600
Physician Referral Service: 800-822-2762
The American Academy of Allergy, Asthma, and Immunology (AAAAI) is a professional organization for physicians who treat patients with allergies, asthma and immunologic disorders. The organization provides a worldwide referral system for physicians in various geographical regions.

American Academy of Pediatrics

www.aap.org
847-434-4000
The American Academy of Pediatrics (AAP) is a professional organization for pediatricians. It is committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.

Clinical Immunology Society

www.clinimmsoc.org
414-224-8095
The mission of the Clinical Immunology Society (CIS) is to facilitate education, translational research and novel approaches to therapy in clinical immunology to promote excellence in the care of patients with immunologic/inflammatory disorders.

Federation of Clinical Immunology Societies

www.focisnet.org
The Federation of Clinical Immunology Societies (FOCIS) exists to improve human health through immunology by fostering interdisciplinary approaches to both understand and treat immune-based diseases.

Immunoglobulin Nursing Society

www.ig-ns.org
Immunoglobulin Nursing Society (IgNS) is a professional organization dedicated to nursing professionals in education, management, practice and research in the field of immunoglobulin (Ig) therapy.

Infusion Nurses Society

www.ins1.org
The Infusion Nurses Society (INS) is dedicated to exceeding the public’s expectations of excellence by setting the standard for infusion care.

International Organizations

European Society for Immunodeficiencies (ESID)

www.esid.org
The European Society for Immunodeficiencies (ESID) is a non-profit medical organization. The purpose of ESID is to foster excellence in research and medical practice and to promote interaction with nurses and patient associations, so as to increase exchange of information among patients, parents of patients, nurses, doctors and researchers.

International Nursing Group for Immunodeficiencies (INGID)

www.ingid.org
The purpose of the International Nursing Group for Immunodeficiencies (INGID) is to improve and extend the quality of nursing care of patients with primary immunodeficiencies, and to increase the awareness and understanding of primary immunodeficiencies amongst nurses.

Latin American Group for Primary Immunodeficiencies (LAGID)

www.lagid.lsuhsc.edu
The Latin American Group for Primary Immunodeficiencies (LAGID) is a professional organization comprised of physicians from various Latino countries who are dedicated to promoting the awareness, diagnosis and treatment of primary immunodeficiency diseases in these countries.

Federal Organizations

Centers for Disease Control and Prevention, National Immunization Program

www.cdc.gov/vaccines 
800-CDC-INFO (800-232-4636)
This division of the CDC provides information on general vaccinations and specific precautions for individuals affected with primary immunodeficiencies.

Center for Biologics Evaluation and Research, FDA

www.fda.gov/BiologicsBloodVaccines  
800-835-4709
A division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. This agency provides information on biological products, such as blood and plasma, including new product approvals, adverse events, product recalls and withdrawals.

Centers for Medicare and Medicaid Services

www.cms.gov 
800-633-4227
The Centers for Medicare and Medicaid Services (CMS) provides information for individuals receiving services from Medicare, Medicaid or SCHIP.

National Institutes of Health

U.S. Department of Health And Human Services: National Institutes of Health
www.nih.gov 
301-496-4000
The National Institutes of Health (NIH) provides information on advances in health, science and medical issues. The following are divisions of NIH: 

  • National Cancer Institute
    www.cancer.gov 
    800-422-6237
    National Cancer Institute (NCI) provides the following information about cancer: topics, trials, statistics and research.
  • National Heart, Lung and Blood Institute
    www.nhlbi.nih.gov 
    301-592-8573
    The National Heart, Lung and Blood Institute (NHLBI) provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders.
  • National Human Genome Research Institute
    www.genome.gov 
    301-402-0911
    The National Human Genome Research Institute (NHGRI) applies genome technologies to the study of specific diseases and the genetic components of complex disorders.
  • National Institute of Allergy and Infectious Diseases
    www.niaid.nih.gov 
    Office of Communications: 301-496-5717
    The National Institute of Allergy and Infectious Diseases (NIAID) is provides information on allergy and infectious diseases, as well as primary immunodeficiencies.
  • National Institute of Child Health and Human Development 
    www.nichd.nih.gov 
    800-370-2943
    The National Institute of Child Health and Human Development (NICHD) provides general information on children’s health issues, including an in-depth booklet on primary immunodeficiencies.
  • NIH Clinical Trials
    www.clinicaltrials.gov 
    800-411-1222
    The NIH Clinical Trials site contains current information on clinical trials being conducted, some of which may be pertinent to primary immunodeficiencies.
  • NIH Health Information
    www.health.nih.gov 
    This is an A-Z index of NIH health resources, clinical trials, MedlinePlus and health hotlines.
  • NIH Office of Rare Diseases
    www.rarediseases.info.nih.gov 
    301-402-4336
    The NIH Office of Rare Diseases (ORD) coordinates research on rare diseases and supports research to respond to the needs of patients who have any one of the more than 6,000 rare diseases known today.
  • NIH Research Training and Scientific References
    www.nih.gov/science 
    This site contains information about intramural research, Human Embryonic Stem Cell Registry, scientific interest groups, library catalogs, journals, training, labs, scientific computing and more.
  • National Library of Medicine
    www.nlm.nih.gov 
    888-346-3656
    The National Library of Medicine (NLM) is the world’s largest medical library. The library collects materials and provides information and research services in all areas of biomedicine and healthcare.
National Office of Public Health Genomics

www.cdc.gov/genomics 
770-488-8510
This site provides updated information on how human genomic discoveries can be used to improve health and prevent disease. It also provides links to Centers for Disease Control and Prevention (CDC) activities in public health genomics.

U.S. Department of Health and Human Services

www.hhs.gov 
877-696-6775
The U.S. Department of Health and Human Services (HHS) is the U.S. government’s principal agency for protecting the health of all Americans and providing essential human services. The site contains information on the department’s numerous federal programs.