Please Correct the Following Form Errors
close
Ask IDF
  • 1.800.296.4433
  • info@primaryimmune.org
Menu 
  • Home
  • About IDF
      • About IDF

        Mission Statement

        President and Founder's Message

        IDF Board of Trustees

        IDF Staff Management Team

      • IDF Medical Advisory Committee

        IDF Nurse Advisory Committee

        Core Service Corporate Sponsors

        Contact Us

  • Learn About Primary Immunodeficiencies
      • What Are Primary Immunodeficiencies?

        Specific Disease Types

        There are more than 300 primary immunodeficiency diseases recognized by the World Health Organization. Read about specific disease types.

        IDF Publications

        Educational materials developed by expert immunologists and healthcare professionals to help understand and manage the unique aspects of PI.

        IDF Videos

        Informative videos which include educational presentations, personal patient stories, advocacy issues, videos for children and teens, and more.

        IDF International Section

        Many IDF resources have been translated into other languages. Visit the IDF International Section to see what's available.
      • Treatment

        Immunoglobulin Therapy

         

        Stem Cell and Gene Therapy

         

        Newborn Screening

         

        Immunoglobulin Products

         

        Manufacturers and Assistance Programs

         

        Product Recalls and Withdrawals

      • Relevant Information

        The Immune System

         

        Inheritance

         

        Laboratory Tests

         

        Infections

         

        General Care

         

        Immunizations

         

        Allergies

         

        Autoimmunity

         

        Flu Vaccine

         

        Supplemental Materials

  • Living with Primary Immunodeficiencies
      • Life Stages

        Infants and Children

        Teens

        Young Adults

        Adults

      • Services

        Ask IDF

        IDF is here to help - have your questions answered

        Locate a physician

        Let IDF help you find a specialist in your area

        Peer Support

        Talk with someone who understands

        Patient Insurance Center

        Get help with you insurance issues

        Educational Materials

        Resources offering valuable information

        IDF ePHR

        Online health record designed for the PI community

        PI CONNECT

        IDF Patient-Powered Research - Join the research conversation & help advance the understanding of PI

      • Programs

        Local Education Meetings

        One day educational meetings held across the U.S.

        IDF Teen Escape

        Weekend programs designed for teens

        IDF Retreats

        Weekend gatherings for all ages

        IDF National Conference

        Three days of valuable learning for the PI community

        IDF Young Adult Webinars

        Learn tips for tackling the unique issues faced by young adults with PI

  • Take Action
      • What You Can Do Now

        Join Our Advocacy Campaigns

        Promote policies that positively affect the PI community

        Sign Up for Action Alerts

        Get alerts when your voice can make a difference

        Find Your Elected Officials

        Easily contact your legislators

        Take Steps to Make a Difference

        Get involved at the grassroots level

        Watch IDF Advocacy Channel

        View powerful patient stories that impact policy

      •        

        Promote Awareness

        Use IDF materials to help spread the word about PI

        Ask IDF

        Have your questions answered - IDF is here to help

        Sign Up with IDF

        Stay informed with IDF communications

        Share Your Experiences

        Inspire others through your stories and videos

        Visit a Plasma Center

        Discover the connection between patients & plasma centers

        Enroll in USIDNET Patient Registry

        Register today and help advance research.

      • Support IDF

        Explore ways to give to IDF and help advance our mission

        IDF Walk for Primary Immunodeficiency

        Raise funds for IDF and awareness of PI

        Volunteer for IDF

        Join our nationwide network of volunteers

  • Resources
      • For Patients & Families

        Peer Support

        Speak with someone who understands

        Locate a Physician

        Let IDF find a specialist in your area

        Additional Resources

        Find more information to help live with PI

        Clinical Trial Information

        Learn about current clinical trials in the U.S.

        IDF SCID Initiative

        Initiative to meet the needs of the SCID community

        IDF NEMO Initiative

        Program created for the NEMO community

        Bill of Rights for Patients with PI

        Know your rights

        IDF Videos

        IDF network of videos created for our community

      • IDF Educational Publications

        Essential information developed by experts

        Patient Insurance Center

        The place for answers to your insurance issues

        IDF ePHR

        Online health record designed for the PI community

        PI CONNECT

        IDF Patient-Powered Research - Join the research conversation & help advance the understanding of PI

        IDF Living with CGD Website

        The IDF Resource for the CGD Community

      • For Healthcare Professionals

        Consulting Immunologist Program

        Free physician to physician consults about diagnosis, treatment & disease management

        IDF & USIDNET LeBien Visiting Professor Program

        Provides a visiting professor to teaching hospitals

        IDF Online Course for Nurses

        Free 5-hour CEU update on PI and Ig Therapy

        IDF Video Series for Nurses in French, German & Spanish

        Free non-credit video series on PI and Ig Therapy

        IDF Publications

        Educational materials developed by expert immunologists and healthcare professionals

        Conferences and Meetings

        National and International meetings for heatlhcare professionals

  • Connect
      • IDF Social Networks

        IDF Friends

        Our social network created exclusively for adult patients and family members

        IDF Common Ground

        A social network for teens to connect and talk about living with PI

      • IDF Reel Stories

        Inspiring videos of patients, parents and caregivers

        IDF Blog

        Covering the latest news and events

        IDF Advocate

        Newsletter highlighting the work of the IDF community

        Primary Immune Tribune

        E-newsletter featuring IDF activities

        IDF Videos

        Network of IDF videos

      • Peer Support

        Volunteers offer encouragement to all family members

        Sign Up with IDF

        Stay informed and receive the latest from IDF

  • Donate
      • Ways to Give

        Discover the various ways you can help IDF

        IDF Walk for Primary Immunodeficiency

        Raise funds for IDF and awareness of PI

        Matching Gifts

        Check if your employer will match your donation

      • Make Your Gift Now

        It’s fast, easy and secure

        Legacy Giving

        Establish your personal legacy and support IDF

        'Immune Deficiency Foundation Remembers' Plaque

        Pay tribute to members of our community


Home / IDF Survey Research Center / IDF Surveys / Patient Surveys

IDF Surveys

  • Patient Surveys
  • Treatment Surveys
  • IVIG Access Surveys
  • Journal Articles

Patient Surveys



Print Friendly

Primary Immune Deficiency Diseases in America: The First National Survey of Patients and Specialists (1995)
January 8, 2016

Primary Immune Deficiency Diseases in America: The Second National Survey of Patients (2002)
January 8, 2016

Primary Immune Deficiency Diseases in America: The Third National Survey of Patients (2007)
January 8, 2016

Pin It
Email

  • About Us
  • Contact Us
  • Sponsors
  • Volunteer
  • Make a Donation
  • Terms of Use
  • Privacy Policy


Immune Deficiency Foundation, 110 West Road, Suite 300, Towson, Maryland 21204
Email: info@primaryimmune.org Phone: 800-296-4433 © 2017 All Rights Reserved.