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In the News
News About IDF
Talecris Biotherapeutics Acquires Bayer Healthcare, LLC Biological Products Division
April 1, 2005
News About Serving Individuals and Families
Register with the Patient
Notification System, a free, confidential, 24-hour communication system
designed to provide plasma product consumers, health care professionals,
and patient family members with timely, automatic updates about plasma
product withdrawals and recalls from all participating manufacturers.
News About Medical and Scientific Programs
GeneReview on X-linked Hyper IgM syndrome
Research Consortium to Receive Largest-Ever
Federal Contract for Primary Immune Deficiency Research $12.8 Million
NIH Contract to Fund Groundbreaking Research
Announcement, October
3, 2003
Read the following article for more information on SARS and the risks
for primary immune deficiency diseases: Severe
Acute Respiratory Syndrome
Important Information on Smallpox and Smallpox
Vaccine
Both Smallpox and the Smallpox vaccine could pose major health risks to
individuals with primary immune deficiency diseases. Please read the attached
letter and Question & Answer sheet to learn more about Smallpox and
the Smallpox Vaccine.
1) IDF Letter to the Community on
Smallpox
2) Questions and Answers: Smallpox and
Smallpox Vaccine
The West Nile Virus: What is Known
About an Emerging Virus?
News About Public Policy Initiatives
Advocates for Primary Immune
Disease Community Take to Capitol Hill to Warn of New Challenges, Applaud
Progress
President
Bush Signs Rare Disease Legislation
FDA
Announces Smallpox Vaccine Guidance for Blood Industry - 12/30/2002
Information
about West Nile Virus and Blood Safety - Updated 10/3/2002
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