Patients & Families

In 1980, IDF was founded by families of children with primary immunodeficiency diseases. Knowing first-hand the many challenges that you have, or may eventually be facing, IDF has developed resources to meet your needs.  Whether you or a family member is newly diagnosed or been living with a primary immunodeficiency disease for years, IDF provides services to help patients and families cope.

• IDF provides the most authoritative educational information and up-to-date publications for people living with a primary immunodeficiency disease.  There is no charge for these and most are available to download from the IDF website.
• IDF connects patients and their families with others who have gone through similar situations to share experiences, encouragement and understanding.
• Patients receive individual help with questions about insurance, physician location, personalized instructional materials, and access to care and treatment.
• Local, regional and national level educational meetings featuring leading immunologists are presented throughout the year.

IDF created all of these resources, and many more, for patients and families living with primary immunodeficiency diseases.  Be sure to visit our website often, for the leading up-to-date information on primary immunodeficiency diseases, as well as direct access to valuable programs, meetings and support, both nationally and locally.