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Home / Patients & Families / Ask IDF / Get Connected with IDF!

Get Connected with IDF!

Every Voice Counts

By completing this form, you are playing a vital role in maintaining the largest database of individuals whose lives are affected by primary immunodeficiency diseases. Your information enables IDF to perform valuable surveys that have been, and will continue to be instrumental in advancing the needs of the primary immunodeficiency community. Your name and contact information will not be shared with other organizations and this information will be kept strictly confidential. Please Click Here to read our Privacy Policy.

Being a part of IDF has wonderful benefits for you! We will keep you informed of the latest news regarding treatment, education, recalls, programs and other timely issues for those living with primary immunodeficiencies, via the Primary Immune Tribune monthly e-newsletter, and the IDF ADVOCATE printed newsletter.

If you are a medical professional please use our Healthcare Professional contact form.

So what are you waiting for? Please take a few moments and fill in the following information.

I am:

New to IDF  Updating existing information

I am:  (check all that apply)

Patient with a Primary Immunodeficiency Disease  Parent/Caregiver* 
Other:   

*Parents - please complete the form below. If your child no longer resides with you, please either fill out your child's information or forward the information for this webpage to your child.
Patient
   
Parent/Caregiver/Other
   
   

What is the patient's current diagnosis?

Agammaglobulinemia (XLA) Selective IgA Deficiency
Ataxia Telangiectasia Severe Combined Immunodeficiency
Chronic Granulomatous Disease Wiskott-Aldrich Syndrome
Common Variable Immunodeficiency Not sure
Complement Deficiency Other:  
DiGeorge Syndrome
Hyper IgM Syndrome

Who is the physician who treats the patients' primary immunodeficiency disease?

What primary health insurance does the patient currently have? (Select one)

Employer coverage Other group coverage
Individual policy Medicare
Medicaid Other

What treatment does the patient receive? (Select one)

Intravenous Immunoglobulin (IVIG)*
Subcutaneous Immunoglobulin (SCIG)*
Neither

*What is the current brand of IVIG or SCIG used?

Enter brand name here:  

Would you like to add another family member to your profile?

Click checkbox to add another family member.
Patient

What is the patient's current diagnosis?

Agammaglobulinemia (XLA) Selective IgA Deficiency
Ataxia Telangiectasia Severe Combined Immunodeficiency
Chronic Granulomatous Disease Wiskott-Aldrich Syndrome
Common Variable Immunodeficiency Not sure
Complement Deficiency Other:  
DiGeorge Syndrome
Hyper IgM Syndrome

Who is the physician who treats the patients' primary immunodeficiency disease?

What primary health insurance does the patient currently have? (Select one)

Employer coverage Other group coverage
Individual policy Medicare
Medicaid Other

What treatment does the patient receive? (Select one)

Intravenous Immunoglobulin (IVIG)*
Subcutaneous Immunoglobulin (SCIG)*
Neither

*What is the current brand of IVIG or SCIG used?

Enter brand name here:  

Would you like to add another family member to your profile?

Click checkbox to add another family member.
Patient

What is the patient's current diagnosis?

Agammaglobulinemia (XLA) Selective IgA Deficiency
Ataxia Telangiectasia Severe Combined Immunodeficiency
Chronic Granulomatous Disease Wiskott-Aldrich Syndrome
Common Variable Immunodeficiency Not sure
Complement Deficiency Other:  
DiGeorge Syndrome
Hyper IgM Syndrome

Who is the physician who treats the patients' primary immunodeficiency disease?

What primary health insurance does the patient currently have? (Select one)

Employer coverage Other group coverage
Individual policy Medicare
Medicaid Other

What treatment does the patient receive? (Select one)

Intravenous Immunoglobulin (IVIG)*
Subcutaneous Immunoglobulin (SCIG)*
Neither

*What is the current brand of IVIG or SCIG used?

Enter brand name here:  

Would you like to add another family member to your profile?

Click checkbox to add another family member.
Patient

What is the patient's current diagnosis?

Agammaglobulinemia (XLA) Selective IgA Deficiency
Ataxia Telangiectasia Severe Combined Immunodeficiency
Chronic Granulomatous Disease Wiskott-Aldrich Syndrome
Common Variable Immunodeficiency Not sure
Complement Deficiency Other:  
DiGeorge Syndrome
Hyper IgM Syndrome

Who is the physician who treats the patients' primary immunodeficiency disease?

What primary health insurance does the patient currently have? (Select one)

Employer coverage Other group coverage
Individual policy Medicare
Medicaid Other

What treatment does the patient receive? (Select one)

Intravenous Immunoglobulin (IVIG)*
Subcutaneous Immunoglobulin (SCIG)*
Neither
Enter brand name here:  
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Re-type Captcha Code*:  
 

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