HOME
ABOUT IDF
ABOUT PRIMARY
IMMUNODEFICIENCIES
PATIENTS
& FAMILIES- Patient Insurance Center
- Bill of Rights for Patients with PIDD
- Patient Education Programs
- Peer Support
- Health Insurance FAQ’s
- Scholarship Programs
- USIDNET Patients
- IDF SCID Initiative
- Get Connected with IDF!
- IDF NEMO Initiative
- Clinical Trial Information
- Locate a Physician
- Ask IDF
- Volunteer for IDF
- IDF eHealthRecord
- IDF Kids Connection
HEALTHCARE
PROFESSIONALS- IDF Medical Advisory Committee
- IDF Nurse Advisory Committee
- Consulting Immunologist Program
- IDF & USIDNET LeBien Visiting Professor Program
- Continuing Education Course for Nurses
- Video Series For Nurses
- USIDNET Healthcare
- Health Insurance “How to Appeal” Tips
- Links to Professional Organization
- Healthcare Professional Contact
TREATMENT
INFORMATION
PHOTO
GALLERY
IDF
STORE
IDF eHealthRecord
Electronic Personal Health Record Custom Designed for the Primary Immunodeficiency Disease Community

NEW USERS: Click to sign-up
Why should I sign up for the IDF eHealthRecord?
It will make your life easier and help you organize all of your health information in one place. In addition IDF provides instructions to get you started, there’s no cost to use the program, and it’s built on a safe and secure platform.
What can the IDF eHealthRecord exactly do?
The program enables you to easily and securely record, access and share your health information. It also has the capabilities to:
- Track diagnosis, infections and symptoms.
- Scan and save important documents.
- Log doctor’s visits and medications.
- Create an In Case of Emergency (I.C.E.) Report.
- Schedule and review events in the calendar.
- Share, print and export your record.
- And much more!
IDF eHealth Record Testimonials
“I already have a trust relationship with IDF, and they understand the needs of patients with primary immunodeficiencies. Who else would I trust to help me manage my health records?”
- Sue Manley, patient with a primary immunodeficiency disease
“It’s flexible – I can skip through parts and complete them at my own convenience.”
- Terry Halper, patient with a primary immunodeficiency disease
“I can create new health records within the same account and manage the information of both of my children.”
- Melody Medellin, mom of patient with a primary immunodeficiency disease
RETURNING USERS: Click to sign-in
What if I have questions?
Once you register, our Help and Information Section has more information, FAQ’s and tutorial videos. If you have any further questions, please contact IDF at: 800.296.4433 (Monday-Friday, 9 a.m.-5 p.m. EST) or info@idfehealthrecord.org.
Learn how easy it is to use the IDF eHealthRecord. Click on the videos below to check out our “4 Minutes or Less” videos to learn how to:
- Keep an Infusion Log
- Create an “In Case of Emergency” (ICE) Report
In our 4 Minutes or Less videos, IDF staff members will show you how simple the IDF eHealthRecord can be—how truly effortless keeping track of your care can be.
Sponsored by
![]()















