- ABOUT IDF
- ABOUT PRIMARY
- Patient Insurance Center
- Bill of Rights for Patients with PIDD
- Patient Education Programs
- Peer Support
- Health Insurance FAQ’s
- Scholarship Programs
- USIDNET Patients
- IDF SCID Initiative
- Get Connected with IDF!
- IDF NEMO Initiative
- Clinical Trial Information
- Locate a Physician
- Ask IDF
- Volunteer for IDF
- IDF eHealthRecord
- IDF Kids Connection
- IDF Medical Advisory Committee
- IDF Nurse Advisory Committee
- Consulting Immunologist Program
- IDF & USIDNET LeBien Visiting Professor Program
- Continuing Education Course for Nurses
- Video Series For Nurses
- USIDNET Healthcare
- Health Insurance “How to Appeal” Tips
- Links to Professional Organization
- Healthcare Professional Contact
IDF Retreats are for everyone in the primary immunodeficiency community – patients, parents, siblings, children and partners.
Whether you are newly diagnosed or have been living with a primary immunodeficiency disease for years, IDF Retreats offer an opportunity to connect with others to learn more about dealing with your disease. Leading physicians and healthcare professionals will present the latest information about the treatment and management of primary immunodeficiencies. Life management and everyday concerns will be featured in panel discussions led by experts in their fields. The youth and teen programs offer both education and fun, and are designed to help the younger members of our community better manage their diseases.
Perhaps, most importantly, these weekend gatherings offer an atmosphere to build relationships with others who share common experiences, therapies and feelings.
So, come connect with the IDF Community and have some fun while developing better approaches to living with primary immunodeficiency.
- Learn more about primary immunodeficiencies, your immune system, and immunological testing.
- Gain knowledge about therapies – immune globulin replacement, antibiotic and antifungal therapies and bone marrow transplantation.
- Find out how to manage living with a chronic illness.
- Discover how to work with your health insurance provider.
- Share coping tips and ideas with your peers.
- Take advantage of the Ask the Expert sessions to get your questions answered.
- Teen Escape (13 – 18 years) This program is designed for teens to promote friendship, build leadership and coping skills and learn about primary immunodeficiency diseases.
- Kids Club (5 – 9 years) and ‘Tween Scene (10 – 12 years) These groups will enjoy crafts and games as they learn about their immune system and how to take care of themselves.
- Childcare (6 months – 4 years) High-quality services and age appropriate activities for children will be provided.