The IDF NEMO Initiative was established as a project dedicated to help families and to address the acute need for a program for education, awareness, research and diagnosis of NEMO.
NEMO is a form of primary immunodeficiency, a complicated disease caused by a genetic mutation in the IKBKG gene that contains the code for a protein called the “NF-κB essential modulator”. NEMO can affect many different cells of the body, both within and outside of the immune system. Individuals with NEMO can have a variety of different problems which relate to the location of the mutation inside the gene. The most common clinical finding is susceptibility to specific bacterial and viral infections. These can be severe, unusual and life-threatening. A majority of patients have skin and dental problems and many are affected by autoimmunity. NEMO is a life-threatening illness, but superb options are presently available to patients who have received a timely diagnosis
The mission of the IDF NEMO Initiative is four-fold:
To contact IDF about any of the programs listed above, email firstname.lastname@example.org
IDF has developed an oversight committee for the NEMO Initiative fund, comprised of community members with specialized interest and knowledge specific of NEMO.
To contribute to the IDF NEMO Initiative, you can donate now online, or mail your contribution to:
IDF NEMO Initiative
110 West Road
Towson, MD 21204