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IDF SCID Initiative

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IDF: The SCID InitiativeThe IDF SCID Initiative was established as a project dedicated to address the acute need for a program for Severe Combined Immune Deficiency (SCID) education, awareness,and diagnosis.

SCID, a type of primary immunodeficiency disease, is commonly known as bubble boy disease. Affected infants lack T lymphocytes; the white blood cells that help resist infections due to a wide array of viruses, bacteria and fungi. Babies with SCID appear healthy at birth, but without early treatment, most often by bone marrow transplant from a healthy donor, these infants will likely die before their first birthday.


The mission of the IDF SCID Initiative is four-fold:

  • To expand public awareness of SCID and the treatment options among families, physicians, and the general public.
  • To increase the probability of early detection and treatment, with the goal to have universal newborn screening for SCID performed on every infant born in all 50 states.
  • To fund research efforts that will identify new treatments, therapies, and ultimately a cure for SCID
  • To provide opportunities for affected individuals and families to attend educational events with physicians and other affected families.

Current Programs

To contact IDF about any of the programs listed below, email

The Story of David

David Vetter, affectionately known as the boy in the bubble, was born with SCID. At the time of his birth in 1971, a bone marrow transplant from an exact matched donor was the only cure for SCID, but there was no match available in David’s family. For 12 years, David captured the world’s attention as he lived in protected environments to maintain relatively germ-free surroundings at Texas Children’s Hospital. Click here to read more about David.

Donate Today

IDF has developed an oversight committee for the SCID Initiative fund, comprised of community members with specialized interest and knowledge specific of SCID. To contribute to the IDF SCID Initiative, you can donate now online, or mail your contribution to:

IDF SCID Initiative
110 West Road, Suite 300
Towson, MD 21204


Supplemental Materials

Click here for articles, testimony and other documentation regarding SCID and the IDF SCID Initiative.

IDF thanks Sigma-Tau Pharmaceuticals, Inc. for support of the IDF SCID Initiative page.
Sigma-Tau Pharmaceuticals, Inc.