IDF Publications Overview

The Immune Deficiency Foundation produces a variety of educational materials for patients and health professionals. All publications are free of charge and can be printed from this website or obtained by contacting IDF at 800-296-4433 or idf@primaryimmune.org.

   

Patient & Family Handbook for Primary Immunodeficiency Diseases, 4th Edition

Patient & Family Handbook for Primary Immunodeficiency Diseases, 4th Edition
For patients and family members, this Handbook contains information about the diagnosis and treatment of primary immunodeficiency diseases, the immune system, specific diseases, therapies, general care, health insurance and issues specific to adult, adolescent, and pediatric patients. A comprehensive resource guide is included. (Spanish 3rd Edition also available)


Clinical Focus on Primary Immune Deficiencies
Clinical Focus is a professional education monograph produced by IDF. It is designed specifically for health care professionals and focuses on topics relevant to primary immunodeficiency diseases. The topic is determined based on the needs of the healthcare community and the interest of the sponsor. Topics in the past have included: Complement Deficiency, Immunization of the Immunocompromised Host, IgG Subclass Deficiency, and Treatment and Prevention of Viral Infections in Patients with Primary Immunodeficiency Diseases.

Clinical Focus on Primary Immune Deficiencies


IDF Diagnostic & Clinical Care Guidelines for Primary Immunodeficiency Diseases

IDF Diagnostic & Clinical Care Guidelines for Primary Immunodeficiency Diseases
Guidelines developed by expert immunologists to enhance earlier diagnosis, improve health outcomes and increase access to specialized healthcare and optimal treatment for patients with primary immunodeficiency diseases. The guidelines include recommendations, strategies and information to assist physicians and patients in making educated decisions about appropriate healthcare.


A Guide for School Personnel on Primary Immunodeficiency Disease
This guide is a valuable reference for parents and school personnel, including administrators, teachers and nurses. It contains key medical points about primary immune deficiency diseases and associated special needs, legal rights of children with chronic disease and resource referrals.

A Guide for School Personnel on Primary Immunodeficiency Disease


Our Immune System

Our Immune System
This storybook educates children about primary immunodeficiency diseases through delightful, eye-catching illustrations. The characters explain how the immune system works and describe the treatments for pediatric patients. Children will understand their own bodies and be better prepared to deal with their own primary immunodeficiency.


IDF Guide for Nurses on Immune Globulin Therapy for Primary Immunodeficiency Diseases, 2nd Edition
This guide provides direction for nurses to administer immune globulin replacement therapy in the safest and most effective way. Information includes: clinical uses for immune globulin replacement therapy; product selection and characteristics; infusions, complications and adverse events of IVIG and SCIG; concomitant medications; nursing interventions and responsibilities and helpful references and resources.

IDF Guide for Nurses on Immune Globulin Therapy for Primary Immunodeficiency Diseases, 2nd Edition


IDF Advocate

IDF Advocate
Stay connected with the IDF ADVOCATE Newsletter published three times a year.  The IDF ADVOCATE is mailed to over 20,000 patients, family members, physicians, nurses, industry, government and interested individuals.


Primary Immune Tribune – IDF’s Electronic Newsletter
To be added to the distribution list, visit the e-newsletter homepage, fill out the required information under the "Subscribe" section and click "submit.".

Primary Immune Tribune - IDF's Electronic Newsletter


How to Keep an Infusion Log

How to Keep an Infusion Log
This brochure explains the value of keeping an immune globulin infusion log, as well as practical information on how to set up your personal records.


IDF Brochure
For distribution to the general public for awareness of primary immunodeficiency diseases and services provided by IDF.  IDF services, materials and programs are outlined in the brochure. The brochure also covers basic information on symptoms of primary immunodeficiency diseases.

IDF Brochure


IDF Cards

IDF Card
For distribution to the general public for awareness of primary immunodeficiency diseases and services provided by IDF.  The info card covers basic information on symptoms of primary immunodeficiency diseases.


Is It Just An Infection? Awareness Flyer
Perfect for bulletin boards in physicians offices, schools or other public places that will catch the attention of people in the community, this flyer cautions people to be suspicious if they have an infection that is recurrent, persistent, severe, unusual, or if it runs in their family.

Is It Just An Infection? Awareness Flyer

Blue Jeans for Healthy Genes Kit

Blue Jeans for Healthy Genes Kit         
Create awareness and raise funds to improve the treatment & diagnosis of primary immunodeficiency diseases.  The Blue Jeans for Healthy Genes kit is full of ideas, as well as all the tools you need to make it successful, including posters, sign-up sheets, stickers, information for your employer, school principal or community leader, educational pieces and all sorts of materials to help promote your event. 


Booklets on 6 Primary Immunodeficiencies
The International Patient Organisation for Primary Immunodeficiencies (IPOPI) has produced 6 different booklets in 5 languages based on IDF's Patient and Family Handbook for Primary Immunodeficiency Diseases 4th Edition.

Booklets on 6 Primary Immunodeficiencies


IDF 2007 Highlights

IDF 2007 Highlights         
The IDF 2007 Highlights is a summary of IDF activities, programs and initiatives from 2007. This piece does an excellent job summarizing IDF's efforts in 2007 to improve the advocacy, education and research of primary immunodeficiency diseases.