|
Publications
Overview
The Immune Deficiency Foundation produces a variety of
educational materials for patients and health professionals. All publications
are free of charge and can be printed from this website or obtained by
contacting IDF at 800-296-4433 or idf@primaryimmune.org.
Immune Deficiency Foundation:
Your partner for living with primary immune deficiency diseases
This brochure describes the IDF and its activities and services.
Treatment
Experiences and Preferences of Patients with Primary Immune Deficiency
Diseases: National Survey
Primary
Immune Deficiency Diseases in America: The First National Survey of Patients
and Specialists
The Immune Deficiency Foundation Diagnostic and Clinical Care Guidelines for Primary Immunodeficiency Diseases
The Immune Deficiency Foundation, in partnership with expert immunologists, developed these comprehensive guidelines for patients and health care providers to enhance earlier diagnosis, improve health outcomes and increase access to specialized health care and optimal treatment for patients with primary immunodeficiency diseases.
Patient and Family Handbook for Primary Immunodeficiency Diseases
The 4th edition
Our Immune
System
This fun booklet educates children on the immune system through a series
of illustrations and animated characters, including T cells, B cells,
and phagocytes. The booklet is available in many languages, including
Spanish.
How to Keep an Infusion Log
This brochure highlights the importance of keeping an infusion log to
track the dates, product lot numbers, and adverse events of IGIV infusions.
IDF supplies infusion log books for both adult and pediatric patients.
IDF Advocate
IDF publishes a quarterly national newsletter to inform its constituents
of the latest happenings at IDF, as well in the field of immunology.
The Clinical Presentation
of the Primary Immunodeficiency Diseases
This primer for physicians provides an overview of primary immune deficiency
diseases and describes the clinical manifestations and laboratory evaluation
of these diseases.
Immune Globulin Therapy:
A Guide for Nurses
Written by the IDF Nursing Advisory Committee, this new educational booklet
on IGIV therapy was created for infusion nurses administering IGIV therapy.
The booklet will be distributed to nurses through the IDF database as
well as through professional nursing organizations.
A Guide for School Personnel: Primary Immune Deficiency Diseases
This booklet educates school personnel about primary immune deficiency diseases and the children that are affected by them. It reviews issues such as medical therapy, vaccinations, special needs, absenteeism and educational rights under federal law for children with primary immune deficiency diseases.
|
