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Category Archives
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Blog Posts
- FDA Safety Communication: New boxed warning for thrombosis related to human immune globulin products. (0)
- Promoting the IDF 2013 National Conference on Baltimore TV Station, WJZ (0)
- Think Zebra: Student’s Awareness Campaign Aids Immune Deficiency Effort (0)
- Grifols Officially Inaugurates New Immunoglobulin Plant in the US (0)
- Foundation in Towson Helps People Nationwide with Immune Deficiencies (0)
- Baxter Announces Topline Results of Phase III Study of Immunoglobulin for Alzheimer’s Disease (0)
- Congressman Brady Accepts Award from IDF (0)
- President & Founder of IDF, Marcia Boyle, Named Inaugural Recipient of PSI President Award (0)
- Marcia Boyle Promotes Awareness Month on Baltimore TV Station (0)
- Urgent – Drug Recall – BIVIGAM Immune Globulin Intravenous (Human), 10% Liquid, 100 mL sterile vial (0)
- April is National Primary Immunodeficiency Awareness Month (0)
- Insurers’ ‘fail first’ policies put some patients at serious risk (0)
- CSL Behring Partners with Pro Supercross Racer to Encourage Those with PIDD to be a “ChamPIon” (0)
- BIVIGAM™ is the First New IVIG Product Approved with a Validated and FDA Approved Thrombin Generation Assay (TGA) Test (0)
- New Law Kicks Off Pilot Program for Patients with Immune Disorders (0)
- President Obama Signs into Law Medicare IVIG Access Act (0)
- ‘Bubble Boy’ Legislation to Create Home Treatment Program (0)
- Medicare IVIG Access Act Passes Congress, Goes to President (0)
- Medicare IVIG Access Act Introduced on the U.S. House of Representatives Floor (0)
- FDA Approves Biotest’s BIVIGAM™, an Intravenous Immune Globulin (Human), 10% liquid (0)
- Medicare Coverage for Immune Deficiency Care at Home Advanced by House (0)
- Medicare IVIG Access Act Passed by U.S. House of Representatives (0)
- IDF Volunteers Inspire “The 12 Ways I Manage My Primary Immune Deficiency” (0)
- TX Dept. of State Health Services will add SCID to Newborn Screening Panel (0)
- IDF Receives Grant from American Legion Child Welfare Foundation to Publish Children’s Book (0)
- Sigma-Tau Pharmaceuticals Inc. Offers New Co-Pay Assistance Program for Adagen Patients (0)
- IDF Reaches International Community, Presents Abstracts in Florence, Italy (0)
- Journal of Clinical Immunology Article on the Importance of Local and National Advocacy Support (0)
- Vidara Launches COMPASS Program (0)
- NIH Researchers Restore Children’s Immune Systems with Refinements in Gene Therapy (0)
- Impact of Severe Weather Conditions on Biological Products (0)
- CDC Reports Cases 18-29 of H3N2v Virus Infection (0)
- IDF volunteer details fight against Coventry Health Care formulary (0)
- Gammagard SD Discontinuation (0)
- Congratulations to IDF Volunteer (0)
- Summer and SCIG: Hot Weather Tips (0)
- Immune Deficiency Foundation Response to the Supreme Court Decision on the Affordable Care Act (0)
- Groups Push Plasma Protein Therapy Exclusion from Biosimilars Pathway (0)
- Video: Making Sense Of The Supreme Court Ruling (0)
- IDF Urges FDA to Exempt Immunoglobulin from Biosimilars Pathway (0)
- IPOPI Position Statement (0)
- Promoting Awareness of PIDD (0)
- Texas to Test Newborns for SCID, a Life-Threatening Immune Disorder (0)
- Plasma Donations Save Lives (0)
- Congressman Upton Tours Biomat Plasma Center (0)
- Parents, Doctors Urge States to Screen for Disease (0)
- IMPORTANT SAFETY INFORMATION (0)
- Immune Deficiency Foundation Advocates for Legislation to Improve Medicare Patient Access to Immunoglobulin Products (0)
- URGENT: BIOLOGIC RECALL INFORMATION (0)
- Baxter Presents Long-term Data on HyQ During AAAAI Annual Meeting (0)
- Bylsma Family Hosts Children with Primary Immune Deficiency Disease (0)
- Patient Safety Must be Priority for Insurers, Too (0)
- Texas TV Station Reports on Primary Immunodeficiency Diseases (0)
- Let Families, Doctors Decide (0)
- IDF Article in Pharmaceuticals Policy and Law Journal (0)
- NIH Scientists Find Cause of Rare Immune Disease (0)
- Man’s Life Saved After Treatment Reinstated (0)
- Parents’ Past Worry Will Save Delaware Babies’ Lives (0)
- Mother Struggles with Insurance Company to Keep Son’s Meds, the Ones that Work (0)
- Victor Grifols selected as Business Leader of the Year 2011 by the Spain – US Chamber of Commerce (0)
- Helping make a dream come true for three Billerica brothers (0)
- Immune Deficiency Foundation Fears Conventry Health Care Policy Compromises Patient Safety (0)
- FDA Approves U.S. Market Return for octagam® Following Octapharma’s Implementation of Enhanced Safety Measures (0)
- Recall of Specific Lots of Gammagard Liquid 1 Gram (0)
- Americans with rare diseases are experiencing diminished access to health care (0)
- Young People With Rare Medical Conditions Faced With Care Issues and Possible Healthcare Cuts Make Their Voices Heard (0)
- Primary Immunodeficiency Diseases: an update on the Classification from the International Union of Immunological Societies Expert Committee for Primary Immunodeficiency (0)
- Rebecca Buckley, M.D., Elected to National Academy of Sciences (0)
- IDF Launches Free Accredited Course for Nurses About Primary Immunodeficiency and Immunoglobulin Therapy (0)
- To Treat Rare Disease, NIH Scientists Repurpose FDA-Approved Drug (0)
- Kedrion Biopharma, Inc. Launches Gammaked® in the U.S. Market (0)
- Scientists Identify the Genetic Mutation Causing “XMEN” Disease (0)
- A Step Closer to Personalized Medicine: Improving Gene Therapy to Treat a Devastating Genetic Disease (0)
- Baxter Announces FDA Approval of Subcutaneous Route of Administration for GAMMAGARD LIQUID for Patients with Primary Immunodeficiency (0)
- Grifols Announces Combined Operations With Talecris to Begin a New Era as a Global Leader of Life-Saving Plasma Therapeutics (0)
- Study at the Children’s Hospital of Philadelphia Yields Causes of Common Variable Immunodeficiency (0)
- Grifols and Talecris Announce Signing of Consent Agreement with FTC Staff (0)
- New Gene Therapy Technique Holds Promise in Treating Immune System Disease (0)
- Health Reform for New Graduates (0)
- Severe and Recurrent Infections May Signal a PIDD (0)
- CSL Discontinues Vivaglobin (0)
- New Highmark Policy Threatens Patients with PIDD (0)
- Important Safety Information (0)
- Risk with subcutaneous or inappropriate intravenous use of vivaglobin (0)
- CSL Behring Receives FDA Approval to Extend Shelf Life of Hizentra (0)
- IL Genetic and Metabolic Diseases Advisory Committee Recommend SCI (0)
- FL Genetics and NBS Advisory Council Recommends SCID Screening for Newborns (0)
- Findings From NIH Study May Help Improve Care For Once-fatal Immune Disease (0)
- Dyer infant Will Get Surgery that could Save his Life (0)
- Grifols Announces US Launch of Flebogamma 10% DIF IVIG (0)
- New Magazine Teaches Children About Primary Immunodeficiency Diseases (0)
- Summary of Remarks from FDA’s Meeting on Biosimilars (0)
- Talecris Biotherapeutics Receives FDA Approval for Gamunex®-C (0)
- Octapharma Product Withdrawal/Product Recall (0)
- URGENT: Voluntary Market Withdrawal – Octagam 5% Liquid Preparation (0)
- IDF Influenza Recommendations: H1N1-A (Swine flu) & Seasonal Influenza (0)
- URGENT: Voluntary Market Withdrawal (0)
- Family of boy born with PIDD prepare for a second child with condition (0)
- Karissa Ybarra Uses Her Experience with PIDD to Help Others (0)
- Rotavirus Vaccine Contraindicated in Infants with SCID (0)
- IDF and A-Plus Seek to Enhance the Safety of Blood Supply (0)
- Grifols to Acquire Talecris Biotherapeutics (0)
- Urgent: Biologic Market Withdrawal Information (0)
- Teen’s Double Transplant Success – CBS Evening News Video (0)
- U.S. Says to Screen Babies for ‘Bubble Boy Disease’ (0)
- Act Quickly! Time to Enroll Pre-Existing Condition Insurance Plan (0)
- Secretary of HHS Announces Addition of SCID to Newborn Screening Standards (0)
- CSL Behring Receives FDA Approval to Extend Shelf Life for Privigen(R) (0)
- NORD Adds a PIDD Co-Payment Fund to their Patient Assistance Programs (0)
- Marcia Boyle Interviewed by IDF Volunteer Joanna Tierno on PIDD Radio (0)
- Baxter & NY-Presbyterian/Weill Cornell Announce GAMMAGARD Study Data (0)
- IDF Awarded 5 Year NIH Grant for USIDNET (0)
- Remarkable Advances in Immunodeficiency: AAAAI 2010 Press Conference (0)
- New Educational Scholarship for Students with WAS (0)
- Clinical Immunology Society/Talecris Fellowship Awards (0)
- CSL Behring Receives FDA Approval of Hizentra, First 20% SCIg (0)
- New High Purity Immunoglobulin Enters Phase III in Europe and the US (0)
- Author’s New Legal Thriller Spotlights Common Variable Immune Deficiency (0)
- Grifols Expands its PatientCare Program to Address Insurance Lapses (0)
- Newborn Screening Increases Survival Outcome for Patients With SCID (0)
- IDF Praises ACHDNC Recommendation for SCID Screening in Newborns (0)
- The High Cost of Cheap Drugs, Op-Ed from IDF President Marcia Boyle (0)
- IDF Volunteer, Julie Fetch, Raises Awareness in an Interview with WSBT (0)
- NIAID Mourns Pediatrician, Immunologist Josiah F. Wedgwood, MD, PhD (0)
- State is First to Test Newborns for T-cell Deficiency Diseases (0)
- Screening Can Diagnose Severe T-Cell Lymphopenia in Newborns (0)
- Jordan S. Orange, M.D., Ph.D., Received APS Prize for Research (0)
- IDF Proud to Announce the birth of John Stephen Boyle! (0)
- Grifols Breaks Ground in San Marcos Texas (0)
- IDF Among First Patient Orgs to Launch Major Social Networking Initiatives (0)
- SCID Kids Leading Healthy, Normal Lives 25 Years After “Bubble Boy” (0)
- What you Need to Know About the Flu (0)
- IDF Influenza Q&A (0)
- Scientists Identify Genetic Cause of Previously Undefined PIDD (0)
- PPTA Unveils New Website Tool (0)
- Flu Vaccine Guidance for Patients with PIDD (0)
- Talecris Biotherapeutics Prices Initial Public Offering of Common Stock (0)
- Mt. Loretto Blood Drive Draws More Than 100 Volunteers (0)
- H1N1 Influenza (Swine Flu) Vaccine, What Patients with PIDD Need to Know (0)
- Attention all Clinical Immunologists, Octapharma Launches Grants Program (0)
- N.C. Biotech Company Plans Rare IPO (0)
- Grand Feat in Grand Canyon (0)
- U.S. Plans Suit to Block CSL’s Purchase of Talecris (0)
- Information about 2009 H1N1 Influenza (Swine Flu) Virus (0)
- Swine Flu and You; What Patients with PIDD Need to Know (0)
- PPTA Statement on the Safety of Plasma Therapies & Swine Influenza (0)
- TX Rep Remembers David Vetter (0)
- PIDD Patients Deserve a Normal Life, Says Brady (0)
- Bill Offers Medicare Reimbursement fix for IVIG (0)
- H.R. 2002 – To Amend Title XVIII of the SS Act (0)
- Bill Seeks Safe Access to Life-saving Therapies (0)
- Viewpoint: Donate Plasma this Month (0)
- IDF Responds to Article Regarding Plasma Donors (0)
- Medicare Patient IVIG Access Act Introduced (0)
- Universal Newborn SCID Screening (0)
- Rare Disorder Won’t Hold Him Back (0)
- Gene Therapy Could Help Lehi’s “bubble girl” (0)
- Gene Therapy May Cure SCID (0)
- Grifols Opens Facility in Northeast L.A. (0)
- Grifols Celebrates Construction of New Facility (0)
- Talecris Introduces Gamunex Connexions Program (0)
- Families get together in struggle against PIDD (0)
- Grifols Launches PediGri On Line (0)
- PPTA Joins Stakeholders (0)
- Octapharma’s Judi Miller Speaks at IDF Fam Retreat (0)
- Newborn Testing Could Save Lives (0)
- Proposed Acquisition of Talecris by CSL Limited (0)
- Octapharma Acquires 33 Plasma Centers (0)
- IDF Announces the Launch of New Web Site (0)
- Fog of Illness Never Seemed to Go Away (0)
- Senate Introduces S. 2990 (0)
- Family: Immune System Disease Can Go Undetected (0)
- Urgent Biologic Recall (0)
- April is PIDD Awareness Month (0)
- Pharmaceutical Policy & Law, Vol 10 (0)
- Sen. Kerry Announces New Legislation (0)
- Influenza Activity Alert: Cases Increase Across US (0)
- Pet Turtles-Cute But Contaminated with Salmonella (0)
- Gene Therapy Cancers Prompt Design of Safer Virus (0)
- Urgent Device Recall (0)
- Market Withdrawal of Octagam Octapharma USA Inc (0)
- This is Something Odd (0)
- Congress must act to expand treatment (0)
- Boy Living in Bubble Develops Leukemia (0)
- Utah Medicare patients denied life-saving treatment (0)
- Baxter & Halozyme Announcement (0)
- MRSA Guidance to Patients (0)
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