XLA Important Research

XLA Patient Survey Live!

If you are a patient with, or the parent of a child under the age of 18, who has been diagnosed with X-linked agammaglobulinemia (XLA), we need your participation in an important survey.

Immunologists from the United States Immunodeficiency Network (USIDnet) contacted IDF to help them design a survey for patients with XLA. IDF, in conjunction with the immunologists, created this survey and now IDF is asking for your input. It is our hope that data from this survey will improve the management of this disease and result in better patient health for those with XLA.

The survey should take 10 to 15 minutes to complete.

All of your answers are confidential, and none of your answers will ever be shared outside of the Immune Deficiency Foundation Survey Research Department.

Your participation in the survey is completely voluntary, refusal to participate will involve no penalty or loss of benefits to which you are entitled from IDF, and you may refuse to answer questions or discontinue your participation at any time.

If you are interested in participating, please click on the link below:

Click Here to Take Survey

If you choose not to participate, thank you for taking the time to read this.

If you have any questions, or concerns regarding this survey, please call the Immune Deficiency Foundation at 1-800-296-4433 and ask for Christopher Scalchunes, Director of Survey Research.