In 2010, the Department of Health and Human Services (HHS) announced the addition of Severe Combined Immunodeficiency (SCID) to the recommended uniform screening panel (RUSP). Today, all 50 states are now screening for SCID. As technology emerges, there will be more newborn screening tests available for different types of PI. Building on our previous success, the Immune Deficiency Foundation (IDF) is prepared to advocate for another nationwide newborn screening campaign for additional PI conditions when such technology is feasible. To support SCID screening follow-up and education as well as other emerging newborn screening efforts, IDF is advocating for passage of the Newborn Screening Saves Lives Reauthorization Act of 2019, which provides for continued funding of newborn screening and related research and education programs through the Health Resources & Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC).
Support Funding for Newborn Screening and Related Research and Education Efforts