If you are interested in telling your story to the local media, download our Media Kit. The kit includes steps on how to go about contacting the media, sample letters and press releases, FAQs about primary immunodeficiency diseases and other helpful information to use when reaching out to your local media.
Perhaps you are a person living with a primary immunodeficiency disease or you have a significant relationship with someone affected by this disease. Whatever your story, it is important to share it with your local media so they understand the local connection to our national effort. Over the years, it has been amazing to see how media stories on primary immunodeficiency diseases can result in the diagnosis of a new patient. This drives home how vital it is to share your story through the media!