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Body Temperature and Fever Response: Upcoming PI CONNECT Research Webinar

August 11, 2015

The Immune Deficiency Foundation (IDF) will be hosting its second PI CONNECT Research Forum Webinar on Thursday, October 29 focusing on Body Temperature and Fever Response. This webinar is exclusively available to PI CONNECT Research Forum users.

How was the topic chosen? Patient power!
This webinar topic resulted from patient input! The top four discussions in the PI CONNECT Research Forum were taken offline and discussed real-time between patients and researchers at the PI CONNECT Live! session at the IDF 2015 National Conference, held in June. You can log in and view the recording of that live session here: http://idfpiconnect.org/videos/

The participants of the live forum nominated their favorite of the four discussions to be the next research webinar topic, and the top two nominations were put out to the entire IDF community for a vote. The votes have been calculated, and the next PI CONNECT Research Webinar will be on Body Temperature and Fever Response.

This topic is particularly important as many patients have expressed concerns over starting with a lower body temperature than normal (98.6 degrees), meaning a slight fever could be overlooked by a medical provider, even when there is an infection present. Others have no temperature increase, or fever, when they have an infection. This research webinar will explain these occurrences and provide attendees with valuable knowledge they can use to improve their visits with medical providers.

The upcoming webinar will take place on Thursday, October 29 at 8 PM ET with introductions and moderation by Kathleen Sullivan, MD, PhD, Principal Investigator for PI CONNECT.

IDF is excited to have two great presenters:

  • Philip A. Mackowiak, MD
    Emeritus Professor of Medicine
    Carolyn Frenkil and Selvin Passen History of Medicine Scholar-in-Residence
    University of Maryland School of Medicine

    Dr. Mackowiak will address the biology of thermoregulation, biological processes leading to fever, why some people are naturally warmer or colder than 98.6 degrees and whether that means anything.

  • Jeff Hasday, MD, PhD
    Dr. Herbert Berger Professor of Medicine
    Professor of Pathology, and Biochemistry & Molecular Biology
    Head, Pulmonary and Critical Care Medicine
    Director, Cytokine Core Laboratory
    University of Maryland School of Medicine

    Dr. Hasday will discuss why we have fever and the role of fever in host defense.

More information, including how to register for this research webinar, will be available soon on the PI CONNECT Research Forum, www.idfpiconnect.org. Stay tuned!

Not in PI CONNECT and want to be a part of this patient-powered research?
If you have an IDF ePHR but are not part of PI CONNECT or the Research Forum, please follow these simple steps to consent into research:

  1. Log into IDF ePHR.
  2. Go to About Me tab.
  3. Select Manage Account Profile.
  4. Locate PI CONNECT Consent section.
  5. Click Edit.
  6. Read the PI CONNECT Consent language with the shaded section, underneath your PI diagnosis.
  7. Answer the consent questions that apply to you.
  8. Click Save.
  9. IDF will email you your login credentials to access the PI CONNECT Research Forum.

If you don’t have an IDF ePHR, visit www.idfephr.org to create an account. If you’d like to be a part of research, you have the opportunity to consent during your account set up.

If you have questions, please contact us at info@idfephr.org.

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