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Carefully Consider Participating in Research

March 21, 2019

The Immune Deficiency Foundation (IDF) offers many ways to get involved in research, and we routinely work with industry and marketing groups to aid in the recruitment of research studies. IDF takes many precautions, however, to make sure contact comes from and through IDF, and we would never give or sell your personal information to third parties. When IDF contacts our community for research, we ensure that the research is:

  • Legitimate
  • Protects the personal health and personal contact information of our community
  • Does not allow for the sale or resale of your data or personal information

If a company (other than IDF) ever contacts you and asks you to participate in research, please carefully consider your participation. If you have questions or concerns about this, please contact IDF at idfresearch@primaryimmune.org.

 

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