Your Input Creates a Better Understanding of CGD
The first-ever Chronic Granulomatous Disease (CGD) Survey from IDF will be available in September 2019! This survey will be emailed to individuals and families affected by CGD. This is a collaborative effort between IDF and the CGD Association. Participating in the CGD Survey will help us to better understand how CGD affects individuals’ lives, including diagnosis and treatment experiences, along with overall well-being and quality of life.
Affecting an estimated 1,200 people in the U.S. and approximately 25,000 people worldwide, CGD is among the rarer primary immunodeficiency diseases (PI). Participating in the CGD Survey will help increase what is currently known about this diagnosis.
Not only will you help the CGD community, but you can be eligible to win an Amazon e-Gift Card! When you complete this survey, your household will be entered into a raffle to win either a $25, $50, or $100 Amazon.com e-Gift Card. Your survey must be completed no later than November 8, 2019 in order to be eligible. The winning households will be notified by November 22, 2019.
We look forward to the results from this upcoming survey and encourage you to share your experiences with IDF! Your participation will provide information that is vital to continue the mission of IDF— to improve the diagnosis, treatment and quality of life of people with PI. Please be on the lookout for the CGD Survey in your inbox in the next few weeks.
If have any questions about this survey project, please e-mail us: firstname.lastname@example.org.
This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.