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Cleveland Rocks!


The Cleveland Patient Education Meeting featured presentations from local experts

We all know that Cleveland is home to the Rock and Roll Hall of Fame, but on October 29 the city rocked in a whole different way as 90 patients and family members converged on the Sheraton Hotel for an IDF Patient Education Meeting!   The event had such amazing turnout as the participants came to learn more about primary immunodeficiency diseases and meet with others who live with these conditions.  Luckily, many IDF volunteers were on hand to rock out - I mean help out, and be a part of the success.  Special thanks go to Mark Leventhal, Judie Koeth, Carol Ambosino, Chrissy Lankey who generously lent their time to assist with the meeting!

The meeting featured local experts in immunology addressing the treatment and management of primary immunodeficiency diseases with presentations and question and answer periods.  Speakers and topics included:

Welcome & IDF Update
Colin Seal, IDF Field Representative & Program Specialist

Overview of Primary Immunodeficiency
Melvin Berger, MD, PhD – CSL Behring

Understanding Immunological Testing for PIDD
Robert Hostoffer, DO – Allergy & Immunology Associates

Ask the Medical Experts
Melvin Berger, MD, PhD – CSL Behring
Robert Hostoffer, DO – Allergy & Immunology Associates
Haig Tcheurekdjian, MD – Allergy & Immunology Associates

The speakers were incredible and one doctor even commented that this was some of the best conversation he had participated in about PIDD.  In addition to the fabulous speakers, the attendees also enjoyed a person to person discussion session for patients and family members only.  This afforded participants with the opportunity to speak one-on-one with others going through similar experiences and share support and resources.

Share in the knowledge, connections, and fun that IDF Patient Education Meetings offer!  Join us at an upcoming meeting or other great IDF event in your area! Check out the IDF Calendar of Events for details.

Please let IDF know if you are involved in any Community in Action activities in your community. Comment below or fill out the Contact form at the top of the page to have your story featured in a future blog post.  To learn more about ways you can get involved, please visit the website at www.primaryimmune.org .

 

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Comments

You are so welcome! Presenters were great! Loved the meeting in Cleveland!