This free four-day conference is the largest gathering of PI patients in the world, bringing together the entire PI community (patients, caregivers, and clinicians) for four days of connection, learning, and networking in a fully engaging virtual environment. Sessions from world-class immunologists, an entire day dedicated to youth programming, and compelling panel discussions are just a few of the highlights. What are you waiting for? Register today!
While you won’t be there in person, you just might feel like you are with the virtual environment and video chat functionality. More than 30 exhibitors will be there to discuss lifestyle management, recent scientific research, and treatment options for primary immunodeficiency. All meeting rooms and lounges can be reached through the lobby with intuitive navigation and live support.
The first day of the conference (Wednesday, June 23) is reserved for our youngest zebras. Special sessions are designed for children, tweens, teens, and young adults.
In addition to educational sessions, there will be an interactive art project, a virtual escape room, and a “cocktail” hour for young adults.
NOTE: If you are under the age of 18 and participating, parents/guardians must fill out THIS FORM for consent to participate.
Programación en Español
Uno de los aspectos más destacados de la Conferencia de PI será el lanzamiento de “Conectarse al Grupo: Grupo de Apoyo para Pacientes y Familiares”, ¡nuestro primer Grupo de apoyo para cacientes y familiars realizado en español! Estas reuniones de grupo continuarán reuniéndose después de la conferencia, mensualmente.
Adicionalmente, 11 otras sesiones contarán con subtítulos en español, lo que ofrecerá un ambiente inclusivo y acogedor para todos los participantes. Estas sesiones incluyen dos sesiones de grupos de apoyo para padres, los tres paneles de discusión y sesiones educativas sobre COVID-19, terapia de Ig, CVID, inmunizaciones, la conexión entre COVID / asma y derechos laborales.
Programming in Spanish
One of the highlights of the PI Conference will be the launch of “Conectarse al Grupo: Grupo de Apoyo”- our first Get Connected Group conducted in Spanish! These group meetings will continue to convene after the conference on a monthly basis.
In addition, 11 other sessions will have Spanish captions provided, offering an inclusive and welcoming environment to all attendees. These sessions include two parent support group sessions, all three panel discussions, and educational sessions on COVID-19, Ig therapy, CVID, immunizations, the COVID/asthma connection, and employment rights.
Engaging Panel Discussions & Educational Sessions
Because the event is virtual, travel is no issue for our presenters! Joining the PI Conference are world-class immunologists and life management experts who will provide sessions on a range of topics related to primary immunodeficiency.
In addition, each day, we will be hosting panel discussions on topics that address issues that range far beyond just PI:
THURSDAY: The Public Face of PI & Rare Disease with Harper Spero, Carol Ann Demaret, Autry Beamon, and John Robison
FRIDAY: Health Equity with Nicole Rochester, Michele Adrasik, and Vivian Hernandez-Trujillo
SATURDAY: The Ethics of Plasma with Mark Skinner, Johan Prevot, Peter Jaworski, and Val Bias
LIST OF SPEAKERS & PRESENTERS: Avery Adams, Carol Ambrosino, Linda Anastasia, Antioine Azar, Mark Ballow, Rebecca Buckley, Manish Butte, Fabio Candotti, Alice Chan, Megan Cooper, Charlotte Cunningham-Rundles, Stephanie Davis, Maite de la Morena, Otavia DelMonte, Deepti Deshpande, Dan Dulek, Lisa Forbes-Satter, Marian Furst, Monica G. Lawrence, Jennifer Heimall, Vivian Hernandez-Trulijo, Woody Hutsell, Sumathi Iyengar, Blachy J. Davila Saldana, Mathew Jenkins, Roger Kobayashi, Don Kohn, Howard Lederman, Jennifer Leiding, Michail Lionakis, Rich Low, Patricia Lugar, Paul Maglione, Christina Mangurian, Michele Manion, Rebecca Marsh, Joshua Milner, Felicia Morton, Ken Olivier, Kenneth N. Olivier, Jennifer Orange, Jodie Ouahed, Sung-Yun Pai, Sandy Parkington, Jennifer Puck, Jason Rasch, Brian Rath, Marc Riedl, Valerie Riley, Chris Riley, Michelle Rose, Megan Ryan, John Seymour, Tracy Shaw, Yvette Shorten, Morgan Similuk, Heather Smith, Kathryn Stephens, Kathleen Sullivan, Todd Talarico, Amy Walsh, Jolan Walter, Rebecca Wang, M. Elizabeth Younger, Akiva Zablocki, Amanda Zablocki
Opportunities for connection abound at the IDF Primary Immunodeficiency Conference. Peer connections will happen each day where you can join based on age, family dynamic, or diagnosis. There is even a connections group for our international attendees!
And if you’re craving one-on-one interaction, you can reach out to exhibitors and other attendees for questions or conversation in between sessions. You can even get a bit competitive while exploring the platform, trying to earn points on the leaderboard!
If the connection you want to make is with IDF, we’ve got you covered!
Throughout the conference, you can meet with IDF staff during the live exhibit hours in the Education Hall or the IDF Lounge to have your questions answered about volunteering, policy initiatives, programs, fundraising, and much more. There is even a booth at the conference where you can share your own PI journey and document it via audio recording, video recording, schedule an interview with a member of the IDF team to be featured on our website.
On Friday morning, you can join the IDF Walk team for a morning coffee to learn more about what we have planned for the IDF Walk for Primary Immunodeficiency. And on Saturday morning, you can meet with the IDF Board of Trustees for an intimate, engaging conversation about IDF’s vision and strategy for the future.
Special Events & Celebrations
On Thursday (June 24) evening, there will be a VIP & Awards reception streamed live to Facebook that you don’t want to miss. Awards include the IDF Scientific Achievement Award, the Art of Nursing Award, the Plasma Hero Award, and the Community Hero Award.
On Friday (June 25) evening, you’ll want to participate in Joshua Seth and his live online mind-reading experience: Virtually Connected. His shows are unique, interactive, and engaging for all audiences.
Thanks to the expertise and partnership of Clinical Immunology Society (CIS) and the Immunoglobulin National Society (IgNS), this event is not just limited to patients and families. Wednesday through Friday, there will be clinician education opportunities with continuing education credits provided by partner organizations.
Wednesday’s topics include the administration of Ig, IVIG & SARS-CoV2 Antibodies, and COVID Vaccinations in PI Patients. On Thursday, sessions will explore when to refer young adult patients to an immunologist and lung disease in PI patients. On Friday, the use of immunomodulators to control immune dysregulation and antibiotic prophylaxis will be the topics of the educational sessions.
Sponsors & Exhibitors
This event wouldn’t be possible without our sponsors, exhibitors, and partners. Thank you to our
Gold Sponsors: CSL Plasma, Grifols, Takeda
Silver Sponsors: Horizon Therapeutics
Bronze Sponsors: ADMA Biologics, Chiesi, Octapharma
Exhibitors: Accredo, BPL, Enzyvant, Kedrion, Koru, Pharming, Soleo, X4, Black in Immuno, CGD Association of America, Clinical Immunological Society (CIS), Genetic Disorders of Mucociliary Clearance Consortium (GDMCC), Hyper IgM Foundation, Immunoglobulin National Society (IgNS), Plasma Protein Therapeutics Association (PPTA), Primary Ciliary Dyskinesia (PCD), Primary Immune Deficiency Treatment Consortium (PIDTC), Wiskott-Aldrich Foundation