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The Immune Deficiency Foundation (IDF) National Conference brings together individuals from all sectors of the primary immunodeficiency (PI) community to help people with PI and their families understand and manage these rare, chronic disorders. Throughout the conference, there are opportunities for learning, discussing and sharing for all ages. From physicians to nurses to specialized life management experts, people with PI and their families have an unsurpassed opportunity to network with those on the cutting edge of research and treatment. We want you to join us this year: IDF 2019 National Conference: June 20-22, 2019, in National Harbor, MD (outside of Washington, DC) at the Gaylord Resort and Convention Center.

Below are highlights you can expect from this year’s conference.

Educational Sessions & Networking Opportunities
You can choose from more than 40 sessions and activities! Educational sessions feature world-renowned healthcare professionals and life management experts, and there are plenty of networking opportunities to meet others from the PI community. Overall, you and your family will receive the information you need and the support you deserve at the IDF National Conference.

Advocacy Day & Stand Up for PI: Teen and Young Adult Advocacy Program
Let’s join our voices on Capitol Hill for the annual IDF Advocacy Day, including the Stand Up for PI: Teen and Young Adult Advocacy Program! Held this year in conjunction with the IDF 2019 National Conference on Thursday, June 20, IDF Advocacy Day is essential in educating House and Senate members, and their staff, about issues impacting the PI community, including access to care. This event is open to individuals with PI ages 15 and older as well as parents/caregivers of a person with PI. To engage the next generation, IDF is encouraging teens and young adults to participate in IDF Advocacy Day through Stand Up for PI: Teen and Young Adult Advocacy Program. Click here to learn more.

Thursday Meet & Greet Networking Reception
Kick off the conference on Thursday evening by joining us at the Meet & Greet Networking Reception! This is your first of many chances at the conference to make new connections, catch up with those you’ve met at other IDF events or chatted with online, and simply get to know each other before two. (Please note that dinner will not be provided at this event. We encourage to make dinner plans for one of the many restaurants in the hotel or nearby. Click here to view the hotel restaurant options.)

Friday Opening Session: Where We’re Headed
For nearly 40 years, people facing the diagnosis of a primary immunodeficiency disease (PI) turn to IDF, and we remain steadfast in our commitment to each person diagnosed and to future generations affected by these rare, chronic disorders. Let’s discover how our community has changed over the years and what challenges lie ahead.

IDF Zebra Gala
Celebrate the 10th IDF National Conference with a festive Friday night! Enjoy great music, food, libations, recognitions, and, of course, a touch of zebra. Attire for the night is festive, black and white—as always, zebra stripes are welcome.

IDF Youth & Teen Program
The Youth & Teen Program at the Immune Deficiency Foundation (IDF) National Conference offers fun, age-appropriate activities to help educate the future of the primary immunodeficiency (PI) community. The program is exclusively for children and teens*, ages 6 months to 18 years, diagnosed with PI or who have an immediate family member with a PI. Attendees will be divided into groups by age. Pre-registration is required, and no onsite registration will be accepted. The program is available Friday and Saturday, and families are encouraged to check their children into the program on Thursday evening. Click here for more detail and the schedule.

IDF Education Hall
Leave room in your fun-filled and information-packed conference schedule to visit the amazing Education Hall!  This is your opportunity to learn about the latest products and services available to the PI community. Just like in the past, visiting all the participating exhibits can put you in the running to win an iPad! Click here for more information.

Farewell Ceremony
Say farewell and hear the announcement of the Visit, Learn & Win game winner. Please note that the Farewell Ceremony will conclude the conference. We suggest you arrange your Saturday evening dinner plans with your family and friends—new and old—at one of the restaurants in the hotel or in nearby Washington, DC. Click here to view the hotel restaurant options.

New Sessions in 2019
We've listened to your feedback, and we are featuring several new sessions:

  • Genetic Testing, Gene Therapy & Gene Editing: Get the Basics
  • Autoimmune Polyglandular Syndrome Type 1 (APS Type 1)/Autoimmune Polyendocrinopathy-candidiasis-ectodermal Dystrophy (APECED) - In collaboration with the APS Type 1 Foundation
  • Additional Networking Session: Parents of Adult Children with PI
  • Fatigue, Pain & PI: What Do We Know?
  • Fungus is Among Us: Management of Fungal Infections 
  • On the Road: Travel Tips for Individuals with PI
  • The Golden Years: Managing Your Health as You Age with PI
  • What It Means to be a Carrier of a Genetic Disorder
  • Navigating Your Access to Care in the PI Community
  • Keep Up the Pace: A Session for Adults, ages 35 - 50, Diagnosed with PI
  • The Golden Years: Live Long & Prosper

The Dr. Jerry Winkelstein Professional Meeting: Updates in PID for the Practicing Clinician
In conjunction with the IDF 2019 National Conference, the Clinical Immunology Society (CIS) will once again be hosting a one-day CME program, The Dr. Jerry Winkelstein Professional Meeting: Updates in PID for the Practicing Clinician. This session will be held on Saturday, June 22, from 9:00 a.m. – 4:00 p.m. and will offer attendees the opportunity to learn from leaders in the field of immunology. Registration is open to anyone who works in the field of immunology and is interested in learning about the latest in diagnosis, management, and treatment of PI. Click here for more information and to register

Questions about the IDF National Conference? Click here to contact IDF, or call 414-918-3022.

Want to get notifications about the IDF 2019 National Conference? Make sure your information is up-to-date, including your e-mail address, mailing address, diagnosis of person with PI and year of birth of person with PI. These pieces of information allow us to contact you with information relevant to you and your family. In addition, we will not be able to e-mail you unless you have an IDF My Account and are subscribed to “IDF Events.” If you do have an IDF My Account, simply log in, scroll down to "Household" and edit your information. While you're logged in, scroll down to “My E-mail Subscriptions” and subscribe to “IDF Events” to subscribe to updates. If you have not created an account yet, click here to get started!

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