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IDF Board of Trustees

Tracy Shaw, Chair
Seth Kaufman, Vice Chair
Pete Atherton, PhD, Futures Committee Chair
Kathleen Sullivan, MD, PhD, Medical Advisory Committee Chair
Colleen Dansereau, MSN, RN, CPN, Nurse Advisory Committee Chair
Jorey Berry, IDF President & CEO
Jason Angelos
Charlene Grabowski
Andy Robins
Harper Spero
Sonia Vohnout
Peter Wang


IDF Medical Advisory Committee

The IDF Medical Advisory Committee (MAC)is comprised of prominent immunologists from throughout the country. The mission of the MAC is to enable IDF to provide the highest quality scientific and clinical information on primary immunodeficiency (PI) to patients, caregivers, and healthcare professionals and to advise IDF on key clinical and research issues that advance our understanding of the pathogenesis and potential treatment of PI.


Kathleen Sullivan, MD, PhD, Chair - Children’s Hospital of Philadelphia
Zuhair Ballas, MD University of Iowa Hospitals and Clinics
Francisco Bonilla, MD, PhD Northeast Allergy, Asthma & Immunology
Charlotte Cunningham-Rundles, MD, PhD Mt. Sinai Medical Center
Thomas Fleisher, MD National Institutes of Health
Lisa Forbes Satter, MD Texas Children’s Hospital
Ramsay Fuleihan, MD Columbia University
Joud Hajjar, MD, PhD Texas Children’s Hospital
Vivian Hernandez-Trujillo, MD Allergy and Immunology Care Center of South Florida
Howard Lederman, MD, PhD Johns Hopkins Hospital
Harry Malech, MD National Institutes of Health
Rebecca Marsh, MD Cincinnati Children's Hospital Medical Center
Luigi Notarangelo, MD National Institutes of Health
Hans Ochs, MD Seattle Children’s Hospital and Research Institute
Elena Perez, MD, PhD Allergy Associates of the Palm Beaches
Jennifer Puck, MD University of California, San Francisco
Marc Riedl, MD, MS University of California, San Diego
Sergio D. Rosenzweig, MD, PhD National Institutes of Health
John Routes, MD Medical College of Wisconsin
Troy Torgerson, MD, PhD The Allen Institute for Immunology

Recent Activity


IDF Nurse Advisory Committee

The Immune Deficiency Foundation established the Nurse Advisory Committee in 1999 to improve the quality of healthcare and education provided by nurses for patients with primary immunodeficiency diseases. The Nurse Advisory Committee increases awareness of primary immunodeficiency diseases through professional education and outreach on a national and international level. The Committee is also instrumental in increasing educational and peer support opportunities for individuals and families. The members collaborate with IDF to develop patient educational programs in their own communities and throughout the country.

Colleen Hill Dansereau, MSN, RN, CPN, Chair Dana-Farber Boston Children's Cancer and Blood Disorders Center
Mary Fredrickson, MS, RN, CPN, PHNA-BC, Vice Chair - Children's Hospital of Michigan
William Blouin, MSN, ARNP, CPNP - Allergy and Immunology Care Center of South Florida
Kristin Epland, FNP-C, Midwest Immunology Clinic
Elizabeth K. Garabedian, RN, Vice Chair - National Human Genome Research Institute (NHGRI) National Institutes of Health
M. Elizabeth M. Younger, CRNP, PhD, Johns Hopkins University School of Medicine

Contact the IDF Nurse Advisory Committee

The Nurse Advisory Committee is available as a resource for nurses administering immunoglobulin therapy or treating patients with primary immunodeficiency diseases. The members can be reached by contacting IDF, and staff will assist you in contacting a member of the committee. Contact IDF at 410-321-6647 or submit the Ask IDF form.


Leadership Team

Lynn H. Albizo, JD, Vice President of Public Policy
Jorey Berry, President & CEO
Tammy C. Black, MPA, Vice President of Communications
Alissa Creamer, MPH, Senior Director, Community Services
Chris Duckett, Director, Human Resources
Brian Lloyd, Chief Technology Officer
Sarah Rose, MBA, Chief Financial Officer
Christopher Scalchunes, MPA, Vice President of Research
Aimee Yrlas Simpson, Vice President of Institutional Advancement & Strategic Partnership

To contact a staff member, please call 410-321-6647