Carol Ann Demaret advocated for SCID—and IDF
Carol Ann Demaret, mother of David Vetter, who lived for 12 years with severe combined immunodeficiency (SCID), served on the Immune Deficiency Foundation (IDF) Board of Trustees for 30 years.
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Study shows CVID patients at higher risk for neurologic issues
An IDF-funded study at the University of Utah found that patients with common variable immune deficiency (CVID) experience significant neurologic manifestations affecting their quality of life.
Clinical trial explores biologic treatment for CVID lung condition
Researchers are conducting a clinical trial to test the effectiveness of abatacept, a medication used for arthritis, for granulomatous lymphocytic interstitial lung disease (GLILD).
Lung condition leads to PI diagnosis after two-year medical odyssey
Gary Newton struggled for two years with a debilitating lung condition and was finally diagnosed with common variable immune deficiency (CVID).
Bone marrow transplant curative for man with DOCK8 deficiency
Bryce Powerman is in good health and takes no medications nine years after receiving a bone marrow transplant to treat his DOCK8 deficiency in a National Institutes of Health (NIH) clinical trial.
Study examines procedure to treat severe CGD infections
In a clinical trial, NIAID researchers are testing the safety of mRNA-modified granulocytes to help those with chronic granulomatous disease (CGD) fight infections.
NIH, IDF support young adult in his journey with PI
Diagnosed with primary immunodeficiency (PI) as a teen, Joshua Cash finally found successful treatment from a medical team at the National Institutes of Health and a supportive community at IDF.
Study shows newborn screening improved SCID survival rates
After reviewing 36 years of data, the Primary Immune Deficiency Treatment Consortium (PIDTC) concludes that newborn screening for severe combined immunodeficiency (SCID) has greatly improved survival for babies with SCID.
Teach teens with PI how to transition their healthcare
Dr. Lauren Sanchez of the University of California San Francisco (UCSF) shares details on how to successfully transition children with primary immunodeficiency (PI) from pediatric to adult care.
CDawgVA honors fellow streamer Ironmouse with auction benefitting IDF
YouTuber, streamer, and voice actor Connor Colquhoun, also known as CDawgVA, presents the CDawgVA Charity Auction on June 29, the fourth fundraiser the 26-year-old has organized to benefit IDF.
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