IDF’s new office in Hanover, Maryland is situated near transportation hubs, accommodates large groups, and allows for in-person, virtual, or hybrid events.
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As they care for their toddler son Cyrus Bakhtiari, diagnosed with chronic granulomatous disease (CGD), parents Crystal Cruz and Chahriar Assad must decide what treatment is best for him.
The Immune Deficiency Foundation (IDF) was founded in 1980 by one woman with a newly diagnosed (and chronically ill) child in search of answers. Today, IDF is the primary source for patients to find those answers.
Persons with primary immunodeficiency who have severe antibody deficiencies may develop chronic obstructive pulmonary disease (COPD) due to bronchiectasis caused by repeated lung infections.
A recently published paper, “Parental coping with uncertainties along the severe combined immunodeficiency (SCID) journey,” sheds light on the strategies parents employ to navigate the challenging terrain of a life-threatening diagnosis for their child.
IDF’s Peer Support program connects volunteers affected by primary immunodeficiency (PI) with members of the PI community seeking someone with whom to share their experiences.
IDF sits down with Emily V. Gordon and Kumail Nanjiani as part of the Up The Antibodies campaign to bring hope to immunocompromised Americans
Seniors with primary immunodeficiency have unique health challenges that should be monitored closely by doctors.
IDF Get Connected Groups provide a safe space for those living with PI to discuss the challenges they encounter with their health, resources, and relationships.
NIH has found success in treating chronic granulomatous disease with bone marrow transplants in ongoing clinical trials.