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Share Your Story!

Because primary immunodeficiency diseases (PI) are rare, you may not often hear stories like your own. We would love for you to share your own story and experiences to inspire others living with PI. If you already have experience recording videos, simply record your video and upload below.

Click here to upload your video

Tips When Creating a Video

  • Get the Wide Shot - If you are filming with your phone, be sure to turn your phone horizontally. This will provide a better shot than a limited vertical view.
  • Bright Light Makes Everything Better - If you have a quiet place outdoors, outdoor lighting can be great for your video. If you can only record the video inside, try to be around windows or in a room with a lot of light. Bright light usually makes the video quality better.
  • Keep Your Phone Steady - It’s important to make sure your video is not shaky, so place your phone on a stand or prop it up onto something steady while you’re recording.
  • Finishing up Your Video - When you’re finished, click here to send us your video via Canto upload service.

If you have any questions regarding your video or the upload process, click here to contact us.

View Others' Stories: IDF Reel Stories

IDF Reel Stories are community-generated videos designed to encourage and empower fellow individuals with PI and their loved ones. In addition to general stories of hope and inspiration, you can select from a robust playlist of video testimonials that touch us on some level – whether as individuals, families or as members of the IDF community. To view our Reel Stories, visit the YouTube Playlist, and find a video that relates to your own life experience with PI.

Share Your Experiences Through the Stories Project

If you'd rather tell us your story through a live interview, we'd be happy to write a narrative profiling your experiences as part of our Stories Project. Or you can submit your own narrative. Stories Project narratives run as blogs on the IDF website. Contact us at if you're interested in the Stories Project.