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September 07, 2022
COVID-19

Colds, Flu, and COVID, Oh My…

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Experts expect the 2022-2023 cold and flu season to be rough, and COVID-19 isn't going anywhere either. If you're immunocompromised, get vaccinated, minimize exposure to airborne virus particles and fomites, and have a plan for testing and treatment if you get sick.

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September 02, 2022
Advocacy

How the Inflation Reduction Act Tackles Healthcare Costs

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The Inflation Reduction Act of 2022 lowers prescription drug costs for those with primary immunodeficiency, especially if they are enrolled in Medicare. It will also extend credits for ACA plan premiums, making self-purchased insurance more affordable.

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August 31, 2022
Living with CGD

Family coping with chronic granulomatous disease relies on tight bonds

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Diagnosed with chronic granulomatous disease as infants, brothers Jason Chew and Patrick Chew supported each other throughout their lives.

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August 30, 2022
SCID, SCID Compass

UCLA researcher to update status of ADA-SCID gene therapy trials

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UCLA researcher Dr. Donald Kohn will give an update on the status of the ADA-SCID gene therapy clinical trials.

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August 27, 2022
Education

Educate schools on primary immunodeficiency to better support your child

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Advocate for your child with a primary immunodeficiency diagnosis in the school setting to ensure they receive the support they need in academic, extracurricular, and social endeavors.

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