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Funding from generous supporters of the Immune Deficiency Foundation (IDF) National Conference enable us to offer extremely reduced fees to our conference attendees. With three days of programming, meals and hotel accommodations, there are still costs to be incurred by attendees. IDF does, however, offer scholarships to cover hotel room costs. Read on for more information.  

Registration is now open! Click here to get started.

IDF 2019 National Conference Fees for Attendees
The Registration Fee includes access to all meals, sessions and special events, but it does not include the hotel room cost. The group hotel room rate allows IDF to offer hotel rooms* at a reduced rate. The Youth & Teen Program fee covers the cost of programming, educational activities and childcare. 

Early Registration Fee (on or before May 1, 2019)
Please note that this does not include hotel room cost.

Patients and Families
Individual (1 person): $140
Family (2-4 persons): $225
Family (5-8 persons): $325

Healthcare, Government and Industry/Exhibitor
Individual (1 person): $350

Regular Registration Fee (after May 1, 2019)
Please note that this does not include hotel room cost.

Patients and Families
Individual (1 person): $190
Family (2-4 persons): $275
Family (5-8 persons): $375

Healthcare, Government and Industry/Exhibitor
Individual (1 person): $400

Hotel Room Cost*

Patients, Families, Healthcare, Government and Industry/Exhibitor
$258.50 per night for single/double occupancy. Maximum capacity is four (4) adults per room. 

*After you register online, you will need to “Add Request” on the confirmation page to make your hotel room reservations. Reservations are available for the conference nights (Wednesday, June 19, 2019 through Saturday, June 22, 2019). Please note that your hotel room will need to be booked through the provided link,  do not contact the hotel (Gaylord National Resort and Convention Center) to book a room.  

Commuter Registration Fee (One Day Rate)

Patients and Families
$150 per person per day

Healthcare, Government and Industry/Exhibitor
$250 per person per day

Youth & Teen Program Fee

$100 per child** for two days: Friday and Saturday. There is no onsite registration for the Youth & Teen program. Click here for more information about the Youth & Teen Program

**Attendees, healthcare professionals, government, industry representatives and exhibitors may enroll their child(ren) in the IDF Youth & Teen Program only if they are diagnosed with PI or have an immediate family member with PI. 

IDF 2019 National Conference Scholarships

Thanks to the generosity of dedicated supporters and individual donors, IDF is able to provide hotel room scholarships for the IDF 2019 National Conference in National Harbor, MD. Scholarships are available to cover the costs of hotel room only for up to 3 nights.

As of April 30, 2019, scholarship applications are only being accepted from individuals and families with Autoimmune Polyglandular Syndrome Type 1 (APS-1), Chronic Granulomatous Disease (CGD), Hyper IgM Syndromes (HIGM), Severe Combined Immunodeficiency (SCID) or Wiskott Aldrich Syndrome (WAS). We have awarded the funds available for other diagnoses. 

Scholarship Eligibility Requirements

  • Must be diagnosed with APS-1, CGD, HIGM, SCID or WAS, or have an immediate family member diagnosed with APS-1, CGD, HIGM, SCID or WAS. Please note: if you are applying for a diagnosis-specific scholarship, you must disclose your diagnosis on the scholarship application.
  • Must demonstrate financial need.
  • Priority will be given to those who have not attended a previous IDF National Conference and have never received a scholarship.
  • Awarded on a first come, first served basis.
  • Travel assistance is available to CGD patients and their families. For information on travel assistance to the IDF National Conference, please call the National Organization for Rare Disorders at 800-999-6673 and choose option 3 (Travel and Lodging Department).

If you are notified that you have been awarded a scholarship, you must complete the official conference registration process as soon as possible. We ask this because if you change your mind and do not attend the conference, we can then award that scholarship to someone else. We appreciate your understanding. 

Click here to learn more and apply

Cancellation Information
Please note that topics, presenters and times are subject to change. If you need to cancel your registration for the IDF 2019 National Conference, you must submit your request in writing prior to Friday, May 31, 2019. All fees, less a $50 administrative charge, will be refunded if a written request is received before the May 31 deadline. After May 31, 2019, no refunds will be issued. 

Questions about the IDF National Conference? Click here to contact IDF, or call 414-918-3022.

Want to get notifications about the IDF 2019 National Conference? Make sure your information is up-to-date, including your e-mail address, mailing address, diagnosis of person with PI and year of birth of person with PI. These pieces of information allow us to contact you with information relevant to you and your family. In addition, we will not be able to e-mail you unless you have an IDF My Account and are subscribed to “IDF Events.” If you do have an IDF My Account, simply log in, scroll down to "Household" and edit your information. While you're logged in, scroll down to “My E-mail Subscriptions” and subscribe to “IDF Events” to subscribe to updates. If you have not created an account yet, click here to get started!

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