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Sign up and stay informed! Being a part of IDF has wonderful benefits for you! We will keep you informed of the latest news regarding treatment, education, recalls, programs and other timely issues for those living with primary immunodeficiencies, via the Primary Immune Tribune monthly e-newsletter, and the IDF ADVOCATE printed newsletter.


By completing this form, you are also playing a vital role in maintaining the largest database of individuals whose lives are affected by primary immunodeficiency diseases. Your secure information enables IDF to perform valuable surveys that have been and will continue to be instrumental in advancing the needs of the primary immunodeficiency community. Your name and contact information will not be shared with other organizations, and this information will be kept strictly confidential. Please click here to read our Privacy Policy.


If you are a healthcare professional, please use our Healthcare Professional contact form.


Please take a few moments and fill in the following information. We look forward to hearing from you!


I am:

New to IDF  Updating existing information

I am:  (check all that apply)

Patient with a Primary Immunodeficiency Disease  Parent/Caregiver* 

*Parents - please complete the form below. If your child no longer resides with you, please either fill out your child's information or forward the information for this webpage to your child.

What is the patient's current diagnosis?

Agammaglobulinemia (XLA) Selective IgA Deficiency
Ataxia Telangiectasia Severe Combined Immunodeficiency
Chronic Granulomatous Disease Wiskott-Aldrich Syndrome
Common Variable Immunodeficiency Not sure
Complement Deficiency Other:  
DiGeorge Syndrome
Hyper IgM Syndrome

Who is the physician who treats the patients' primary immunodeficiency disease?

Would you like to add another family member to your profile?

Click checkbox to add another family member.

How did you hear about IDF? (Select one)

Internet Newspaper Article/News Story
Healthcare Professional Company providing a product or service to the PIDD Community
Other Patient/Family Member Other
IDF Materials

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