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Help Us Preserve Your Protections under the Affordable Care Act (ACA)

The Immune Deficiency Foundation (IDF) is gathering stories to illustrate the importance of preserving certain protections that people with primary immunodeficiency diseases (PI) have benefited from under the Affordable Care Act (ACA). It is imperative that legislators understand the impact that losing these protections will have on our community.

Interested in sharing your story? Contact IDF at: idfadvocacy@primaryimmune.org.

Below are questions that we would like our community to answer:

  • In the past did you have challenges obtaining insurance coverage to treat your PI or other pre-existing conditions? Has that changed in the last few years? Tell us what this means to you and what could happen if you could not get health insurance to cover your pre-existing conditions.
  • If there were no longer prohibitions on insurance companies imposing lifetime dollar limits on how much they will spend on necessary healthcare benefits, how would this impact your family’s financial situation and/or your ability to access necessary care?
  • If there were no longer prohibitions on insurance companies setting annual dollar limits on how much they will spend on your covered services for one year, how would this impact your family’s financial situation and/or ability to access care?
  • Currently, under the ACA the out-of-pocket maximum can be no more than $7,150 for an individual and $14,000 for a family. Tell us about the impact out-of-pocket expenses have had on you and your family. How could removing the maximum limit impact your family?

Want to share your answers to these questions? E-mail IDF at: idfadvocacy@primaryimmune.org.

We cannot lose the gains we have made in healthcare access. Congress needs to know that they must maintain current protections of the healthcare system that:

  • Ensure access to affordable, comprehensive insurance and necessary treatments for people with pre-existing conditions;
  • Prohibit annual and lifetime caps on insurance coverage; and
  • Continue limits on annual out-of-pocket costs.

Make sure to sign up for IDF Action Alerts, and make your voice heard to ensure access to treatment for everyone in the PI community: www.primaryimmune.org/action-alerts.

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