The Immune Deficiency Foundation (IDF) 2018 National Immunoglobulin (Ig) Treatment Survey will be available in the fall and will be mailed to a randomized group of households in the IDF community. The results from our previous National Ig Treatment Surveys, conducted in 1996, 2003, 2008 and 2013, have dramatically helped patients, families, healthcare providers and policy-makers to better understand how Ig replacement therapy impacts the lives of individuals with primary immunodeficiency (PI).
Although the medical recognition of PI had existed for almost 50 years, at the time of the first IDF national patient treatment survey in 1997, there was no current, comprehensive portrait of the patient with PI, their medical condition and their treatment. The IDF treatment surveys are based on persons known to IDF as individuals who use Ig in the treatment of their PI.
Participation in this survey provides information that is vital to continue IDF’s mission — to improve the diagnosis, treatment and quality of life of people with PI.
Now is the time to make sure your contact information is up-to-date so we can potentially reach you to get your thoughts and experiences. If you already have an IDF My Account, log in, scroll down to “My E-mail Subscriptions” and make sure you are subscribed to receive “IDF Surveys.” And if you have not created an IDF My Account yet, go here to start: http://www.primaryimmune.org/my-account.
Be on the lookout for the IDF 2018 National Ig Treatment Survey in your mailbox this fall!