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IDF's annual Advocacy Day, including the teen and young adult program, Stand Up for PI, provides members of the primary immunodeficiency (PI) community across the country the opportunity to travel to Washington, D.C., and meet with members of Congress to share their stories and influence policy. Space is limited and participants are chosen through a highly selective application process.

Every day, Congress makes policy decisions that impact the lives of individuals with rare, chronic conditions like PI. However, most legislators know very little about PI and the effect that different policies could have on those across the community. By sharing experiences and resources with policymakers, IDF Advocacy Day participants help ensure the unique needs of the PI community are met. Participants receive advocacy training, as well as background on the issues. 

As a part of Advocacy Day, IDF hosts the teen and young adult program, Stand Up for PI. This program brings PI community members age 15-25 to Washington, D.C., one day in advance of Advocacy Day to participate in programming specifically tailored to young people. On Advocacy Day, these young members of the community join other participants in meetings with legislators on Capitol Hill.

Step 1: Apply

Apply to join IDF for congressional meetings on Capitol Hill to discuss the needs and concerns of individuals living with PI. Applicants should be people with PI or immediate family members of people with PI and comfortable telling their stories. Deadline to apply is March 3, 2023.

Step 2: Know the Issues

Read up on the issues that IDF focuses on and why.

Step 3: Take Action

Even if you can't participate in IDF Advocacy Day on Capitol Hill, you can still make a difference. Use our Action Alert system to personalize letters to your legislators and show support for IDF's policy priorities.