What better way to spend a day in the summer than coming to sunny Fort Lauderdale with IDF? IDF’s first ever patient education meeting in Southern Florida brought 75 patients and family members to the Hilton Garden Inn on August 20! The event had such amazing turnout as the participants came to learn more about primary immunodeficiency diseases and meet with others who live with these conditions. Luckily many IDF volunteers were on hand to help out and be a part of the success. Special thanks go to Kim Conrad, Kim Culver, Richard and Janet Darby, Jenny Gardner, Sharon Gelfano, and John Guntkowski who generously lent their time to assist with the meeting!
The meeting featured local experts in immunology addressing the treatment and management of primary immunodeficiency diseases with presentations and question and answer periods. Speakers and topics included:
Welcome & IDF Update
Colin Seal, IDF Field Representative & Program Specialist
Overview of Primary Immunodeficiency
Vivian P. Hernandez-Trujillo, MD – Miami Children’s Hospital, Division of Allergy and Immunology
Overview of Bone Marrow Transplantation and Gene Therapy
Gary I. Kleiner, MD, PhD – Joe DiMaggio Children's Hospital, Pediatric Allergy and Immunology
Mark R. Stein, MD – Allergy Associates of the Palm Beaches, An Educational Affiliate of National Jewish Health
Ask the Medical Expert Seminar
William Blouin, MSN, ARNP, CPNP
Vivian P. Hernandez-Trujillo, MD
Gary I. Kleiner, MD, PhD
Mark R. Stein, MD
Lynn Szott, RN
Communicating with Your Healthcare Team
William Blouin, MSN, ARNP, CPNP – Miami Children's Hospital, Clinical Immunology
The Affordable Care Act: Current Reform Measures that Help Persons with Chronic Conditions
Lynn Szott, RN – CSL Behring
In addition to the fabulous speakers, the attendees also enjoyed a person to person discussion session for patients and family members only. This afforded participants with the opportunity to speak one-on-one with others going through similar experiences with PIDD and share support and resources.
Share in the knowledge and connections that IDF Patient Education Meetings offer! Join us at an upcoming meeting or other great IDF event in your area! Check out the IDF Calendar of Events for details.
Please let IDF know if you are involved in any Community in Action activities in your community. Comment below or fill out the Contact form at the top of the page to have your story featured in a future blog post. To learn more about ways you can get involved, please visit the website at www.primaryimmune.org .