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An IDF Health Access Advocate works as an integral part of the public policy team. Advocates work under the direction of IDF public policy staff within their local and state communities to enhance access and remove barriers to care for the PI community.  Tasks may include contacting local legislators on behalf of IDF, testifying at legislative hearings, working with other patient organizations on state and federal issues important to IDF, mobilizing other members of the PI community and participating in various activities that further IDF’s mission.


To serve as a local point of contact for IDF staff, in order to impact, implement, and/or engage advocacy activities at the local and state level.  Under the direction of IDF’s public policy division, advocates will receive the necessary tools and training to represent IDF’s missions and goals. Advocates will establish and maintain a constant line of communication with the public policy team to inform them of activities that may arise such as legislative briefings and communications with public officials.

Key Responsibilities:

  • As requested, schedule in-district meetings and maintain regular connections with members of the state legislature and Congress or their staff to educate, build rapport and keep them informed about IDF’s legislative agenda
  • Maintain a direct line of communication with IDF’s public policy division to discuss and plan legislative actions, messages, and initiatives
  • Work with Public Policy staff to build relationships with the local media and submit approved Op-Ed’s, letters to the editor or other activities to promote/oppose legislation
  • Promote and share all IDF Action Alerts within professional network and public forums
  • Develop and maintain contact list of community leaders
  • Track, attend, and report details about town hall meetings and other community events
  • Maintain accurate log of interactions and follow-up items
  • Work with other IDF Health Access Advocates in your local and State area

Training and Support Provided by IDF:


  • In addition to the IDF Volunteer Development Manager, you will have regular support from the IDF Public Policy Department, who will be your primary contact for questions or concerns.

Training (required):

  • IDF provides training for volunteers to make them effective advocates. Selected applicants will receive comprehensive training from the public policy division. This training will create expert health access advocates while establishing a strong understanding of IDF processes and policies. Advocate training will provide the protocol for obtaining an IDF approval for meetings, materials, or messaging to be used within the community.

Time Commitment:

  • A one-year commitment with 5-8 hours per month. Schedule to be set on an individual basis depending on the availability of the volunteer and the needs of the team.


  • Passion to enrich the lives of people with primary immunodeficiency diseases (PI)
  • Passion to tell the story of PI to the public including government policymakers
  • Must pass all background checks and attend all trainings
  • High school diploma or parental consent
  • Excellent written and verbal communication skills
  • Ability to build appropriate rapport within the PI community and with elected officials; build constructive and effective relationships; use diplomacy and tact
  • Motivated by results; ability to multitask; demonstrate initiative; ability to be flexible and creative; able to meet deadlines and exceed goals
  • Ability to work well with a diverse staff; comfortable and respectful working with all political parties and ideologies
  • Extremely courteous and professional demeanor with solid customer relations skills
  • Availability to commit to this volunteer role for at least one-year
  • Basic familiarity with computers; knowledge of Word and Excel
  • Ability to work independently and be a self-starter
  • Exceptional organizational and time management skills


IDF will empower you to become an effective advocate for issues related to PI. We provide the training, tools, and opportunities you need to ensure your representative voice of the PI community is heard by elected officials.

Apply now!