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IDF in the Steel City is a Golden Opportunity for Patients with PIDD

On Saturday, August 13th IDF was again out and about for an Operation Outreach Meeting, this one in Pittsburgh, PA with 30 patients and family members in attendance! Operation Outreach is a one-day educational meeting that offers educational opportunities for individuals living with primary immunodeficiency diseases.


Presentation at the Operation Outreach Meeting in Pittsburgh

The meeting provided families and health professionals with an introduction to the Immune Deficiency Foundation, and included activities designed to encourage peer support and networking.  The meeting also featured local clinical immunologists addressing the treatment and management of primary immunodeficiency diseases, insurance reimbursement specialists offering advice and resources, and medical professionals speaking about immunoglobulin therapy:

Welcome & IDF Overview
Katherine Antilla, MAEd – Immune Deficiency Foundation

Overview of Primary Immunodeficiency Diseases
Allison Larkin, MD – Children’s Hospital of Pittsburgh of UPMC

Managing Lung Issues & PIDD
Andrej Petrov, MD – University of Pittsburgh Physicians

Immune Globulin Replacement Therapy:  Patient Basics
Elyse Murphy, RN – CSL Behring

Ask the Medical Expert
Allison Larkin, MD – Children’s Hospital of Pittsburgh of UPMC
Andrej Petrov, MD – University of Pittsburgh Physicians
Elyse Murphy, RN – CSL Behring

The Affordable Care Act: Current Reform Measures that Help Persons with Chronic Conditions
Lynn Szott, RN – CSL Behring

Following the presentations, participants  had the opportunity to connect with a person-to-person discussion session for patients and family members only.  For some attendees, this was their first opportunity to meet with other individuals affected by primary immunodeficiency diseases and share experiences and information.

Thank you to all of the patients and family members and medical experts who helped to make this event such a success!  A special thank you goes to CSL Behring who sponsored the event.

Please check out the IDF Calendar of Events for more information about fun and educational events IDF is planning across the country.

Have the Community in Action bug? Comment below or fill out the Contact form at the top of the page to have your story of volunteer activities featured in a future blog post.  To learn more about ways you can get involved, please visit the website at www.primaryimmune.org

 

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