The Immune Deficiency Foundation (IDF) is excited to announce the launch of the new SCID Compass website which was designed to support parents of babies diagnosed with severe combined immunodeficiency (SCID), a rare genetic condition that is fatal if not treated within the first year of life.
The SCID Compass website, www.scidcompass.org, provides parents invaluable information about SCID, the diagnosis, treatment, and post-treatment care. It also offers opportunities for families to connect and receive support.
The website is part of a broader project, the SCID Compass Program, made possible by a grant from the Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services. The goal of the SCID Compass Program is to improve outcomes for babies born with SCID. Other partners include the Association of Public Health Laboratories (APHL), a professional association responsible for supporting newborn screening programs; Expecting Health at Genetic Alliance, a health advocacy organization; RTI International, a non-profit research organization; and SCID, Angels for Life, a non-profit organization.
Visit the website at: www.scidcompass.org.
HRSA Acknowledgement/Disclaimer: This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $4 million with 0% financed with nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government.