On Saturday, November 12th IDF was again out and about for an Operation Outreach Meeting, this one in Bethesda, MD home to the National Institutes of Health and Bethesda Naval Hospital where the President goes to get his yearly check-up. With 65 patients and family members in attendance, the event in Bethesda was the largest IDF Operation Outreach meeting this year! Operation Outreach is a one-day educational meeting that offers educational opportunities for individuals living with primary immunodeficiency diseases.
The meeting provided families and health professionals with an introduction to the Immune Deficiency Foundation, and included activities designed to encourage peer support and networking. The meeting also featured local clinical immunologists addressing the treatment and management of primary immunodeficiency diseases, insurance reimbursement specialists offering advice and resources, and medical professionals speaking about immunoglobulin therapy:
Welcome & What’s New at IDF
Christine Belser – Immune Deficiency Foundation
Overview of Primary Immunodeficiency Disease
Sergio D. Rosenzweig, MD, PhD - National Institute of Allergy and Infectious Diseases
Immune Globulin Replacement Therapy: Patient Basics
M. Elizabeth Younger, CPNP, PhD - Johns Hopkins Hospital
Managing Infections & PIDD
Steven M. Holland, MD - National Institute of Allergy and Infectious Diseases
Ask the Medical Experts
Steven M. Holland, MD
Sergio D. Rosenzweig, MD, PhD
M. Elizabeth Younger, CPNP, PhD
The Affordable Care Act: Current Reform Measures that Help Persons with Chronic Conditions
Lynn Szott, RN – CSL Behring
Following the presentations, participants had the opportunity to connect with a person-to-person discussion session for patients and family members only. For some attendees, this was their first opportunity to meet with other individuals affected by primary immunodeficiency diseases and share experiences and information. The participants expressed how much they enjoyed learning new things about IDF and primary immunodeficiency diseases. One attendee said, “This was the first meeting that my husband was able to attend. Every meeting that my son and I have attended we have learned something new. Great Job!”
Thank you to all of the patients and family members and medical experts who helped to make this event such a success especially our IDF volunteers Judy Kozulak, Judy Berrong, and Sharon Walton! A special thank you goes to CSL Behring who sponsored the event.
Please check out the IDF Calendar of Events for more information about fun and educational events IDF is planning across the country.
Have the Community in Action bug? Comment below or fill out the Contact form at the top of the page to have your story of volunteer activities featured in a future blog post. To learn more about ways you can get involved, please visit the website at www.primaryimmune.org