The Immune Deficiency Foundation (IDF) provides volunteers who visit their local plasma collection centers. By sharing their stories, IDF volunteers, officially named IDF Plasma Awareness Coordinators, put a face to primary immunodeficiency diseases (PI) as they tour the center and thank donors and center staff for their part in producing the therapy that literally saves lives. This is often the first time donors and employees have heard about PI, and they are often profoundly touched to learn that they can make such a difference in people’s lives.
A Plasma Awareness Coordinator must be either a person with PI receiving immunoglobulin (Ig) replacement therapy or an immediate family member of a person with a PI receiving Ig therapy. IDF makes all the arrangements for the visit and can work around your busy schedules, and Plasma Awareness Coordinator receive instructions for their visits and simple talking points.
Rewarding Experiences for Plasma Awareness Coordinators
“I went to the plasma center … What an incredibly wonderful experience! All PI patients should experience this! It is amazing to see the beginning of the process for the product that is our life! I talked with donors, to thank them and let them see a very grateful and thriving patient.”
“I’m really enjoying these visits to the plasma centers! The donors have a different perspective on what they are doing there when I come in and talk to them. I told them ALL that they are life-saving angels!”
“We got a tour of the center and got to meet all of the employees. Who I have to say really, really made us feel welcome. They all knew we were coming and it felt like they really appreciated that we were there. I was amazed at this solely because of how busy they were! Then we got to speak to all of the donors in the waiting room then we went to each of the bed sections and spoke to the people that were actively donating.!”
“My son and I went to the plasma donation center. What an experience! There were about 25 staff members and probably 75 donors. They fed us a yummy lunch and we got to sit in the break room and talk to the employees. It was a great experience. When I asked my son if he liked it, he said it was awesome. I asked him what the best part was, fully expecting him to tell me watching the people donating or maybe even going in the freezer that is -40 degrees. But he said the best part was letting all of the donors know who they are helping.”