The goal of the IDF Survey Research Center is to not only provide the most accurate data on primary immunodeficiency diseases for research, advocacy, and marketing, but to develop a steady revenue stream to further the Foundation’s mission on behalf of patients. IDF will continue to work with industry, government and individual researchers to provide important data for making decisions on immunoglobulin replacement therapy, primary immunodeficiency research and regulatory guidelines that impact our community.
The Immune Deficiency Foundation maintains the complete anonymity of all of our survey respondents. All respondent provided information is de-identified with all answers analyzed in the aggregate so as to prevent the identification of any one individual. Under no circumstances does IDF ever provide patient contact information to outside organizations without the patient's prior consent.
Our patient and medical professional database provides IDF with some unique capabilities:
- Ability to screen participants by:
- PIDD Patient/Physician/Nurse
- Product use
- SCIG use
- PIDD Patient or Caregiver
- Various demographics (age, gender, diagnosis, etc.)
Conducting surveys and studies with the primary immunodeficiency community since 1995, IDF offers great experience and skill in providing quick turn-around and results for:
- Internet and “Pencil & Paper” Surveys
- Focus Groups
- In-person Interviews
- Telephone interviews
IDF can provide for any and all aspects of the management and implementation of these research projects:
- Sample framework
- Recruitment and sample management
- Design of study instrument(s)
- Data collection
- Data analysis
- Report writing
If you would like to partner with IDF on a project or study, or would like more information, please contact IDF's Director of Survey Research at 800.296.4433 or firstname.lastname@example.org.