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POSTPONED - TO BE RESCHEDULED

IDF Ultimate Teen Escape 2020

What is different about this IDF Teen Escape?
The IDF Ultimate Teen Escape includes programming that starts on Friday and more time to make connections with others in the PI community.

What time does the IDF Teen Escape begin and end?
A kick-off pizza party is scheduled for teens and parents at 5:30 PM on Friday. The weekend concludes at 1:00 PM on Sunday.

Can family members attend?
A parent or guardian must accompany a teen with PI. One hotel room will be reserved on Friday and Saturday night for each family. Separate sessions are scheduled for parents and teens throughout the weekend. Please note, this event is exclusively for teens with PI and their parents/guardians. Sessions and/or activities are not available for siblings and/or friends that aren’t diagnosed with PI.

What activities will be offered?
A variety of fun, educational and safe activities designed to build life skills are offered onsite at the hotel, plus a teen outing to Dave & Buster’s for dinner and gaming on Saturday evening.

What is the cost?
A $50 registration fee (non-refundable) per family is required to reserve your space. Registration covers one hotel room for Friday and Saturday night, meals (Friday pizza party, Saturday breakfast, lunch and teen dinner, Sunday breakfast and lunch) and all programming.

Want to get notifications about the IDF Ultimate Teen Escapee 2020?
Use or create IDF My Account to make sure your information is up-to-date, including your e-mail address, mailing address, diagnosis of a person with PI and year of birth of a person with PI. These pieces of information allow us to contact you with information relevant to you and your family. In addition, we will not be able to e-mail you unless you have an IDF My Account and are subscribed to “IDF Events.” If you do have an IDF My Account, simply log in, scroll down to "Household" and edit your information. While you're logged in, scroll down to “My E-mail Subscriptions” and subscribe to “IDF Events” to subscribe to updates. If you have not created an account yet, get started at www.primaryimmune.org/my-account.


About IDF Ultimate Teen Escape

The IDF Ultimate Teen Escape is a weekend getaway exclusively for teens, ages 12-18, who have been diagnosed with primary immunodeficiency (PI). During the weekend, IDF helps teens develop coping skills, promote and nurture friendships and provide educational guidance. While the teens are taking advantage of entertaining and educational activities, parents participate in sessions geared toward their own issues and concerns.

In addition to an opportunity to network with other teens who have been diagnosed with PI, teens participate in fun activities and develop skills to help manage their diagnosis. With an ever-evolving, age-appropriate curriculum, medical and life skill experts present invaluable information for teens with PI. Everyone benefits from learned question and answer sessions.

Parental sessions teach coping and PI management skills. They also offer priceless question and answer time with medical professionals, life skill professionals, IDF Teen Council members and mentors.

The IDF Ultimate Teen Escape provides a program in which teens living with PI and their families can relax, learn, have fun and connect in a setting away from the familiarity of day-to-day medical concerns. 

Questions about the IDF Ultimate Teen Escape? Click here to e-mail IDF. Visit the teen section of our website for more information and resources for teens and parents.

Click below to see photos from the IDF Teen Escapes 2019:

Orlando, FL
San Jose, CA

The IDF Teen Program is supported by CSL Behring, Grifols, Horizon Therapeutics, and Takeda.