Feelings of isolation often accompany the everyday effects of living with a primary immunodeficiency disease. Frequently, those feelings stem from the perception that no one understands what you are going through. Sometimes you simply need to talk freely about how you're feeling. This is the need that IDF support group meetings seek to fill. These meetings allow patients to connect with peer support volunteers along with other patients and family members going through similar experiences.
On February 26, 2011, IDF volunteers Claudia and Brian Pope, Mark and Stephanie Davis and Cathy Davis (no relation) worked with IDF to hold one such meeting in Asheville, NC. Claudia had this to say about the experience:
“ The meeting went great. I was so excited with the turn out we had 14 all together including us, I almost cried. We had a wonderful time and shared a lot and learned a lot too. They are all very excited about coming to the next one as soon as I have it scheduled… I am so excited about this now I have hope that my little support group will grow to and do great things in this community for the IDF and for ourselves as well.”
The North Carolina group will be meeting again on March 26. To find out more about this meeting and all of IDF’s other events, please check out the IDF Calendar of Events
Please let IDF know if you are involved in any Community in Action activities in your community. Comment below or fill out the Contact form at the top of the page to have your story featured in a future blog post. To learn more about ways you can get involved, please visit the website at www.primaryimmune.org