Immune Deficiency Foundation (IDF) Volunteers Chuck Lage and Sue Manley inspired IDF’s version of a traditional holiday song. The concept for “The 12 Ways I Manage My Primary Immune Deficiency” started during a discussion of the IDF eHealthRecord at the IDF Volunteer Leadership Conference in November.
In the style of “The 12 Days of Christmas,” Sue started explaining how she uses the online personal health record, designed specifically for those living with primary immunodeficiency diseases. Chuck chimed in, and the writing began. IDF ran with the idea and created a video: http://www.youtube.com/watch?v=N6zLy6AZvT8
IDF understands what patients and families go through managing a primary immunodeficiency disease. During the holiday season and all year round, IDF encourages patients and families to take advantage of the IDF eHealthRecord to help them manage their healthcare. Happy Holidays and enjoy the song!