IDF was well represented at the PIDTC Second Annual Scientific Workshop, held April 26-28 in Cambridge, MA. IDF Public Policy Manager Emily Hovermale spoke with physicians from the patient advocacy group perspective and discussed IDF’s work. IDF volunteer and co-founder of SCID, Angels for Life Foundation Heather Smith, and IDF Board Member and CGD Foundation founder Mary Hurley also presented at the workshop.
PIDTC is the Primary Immune Deficiency Treatment Consortium is part of the National Institutes of Health (NIH) Rare Diseases Clinical Research Network (RDCRN) and consists of 13 major centers in North America whose shared goal is to improve the outcome of patients with rare, life threatening, inherited disorders of the immune system.
Thank you for representing IDF and working together to promote primary immunodeficiency diseases!