Immune Deficiency Foundation Publications
IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Australasian Edition
The IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Australasian Edition contains comprehensive information about the diagnosis and treatment of primary immunodeficiency diseases and life management. This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team.
Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.
Despite being written specifically for the American health care environment, the majority of this handbook is equally relevant to Australia. Chapters 30 to 32 however, contain information specific to American healthcare, health insurance, education and workplaces, so although the general concepts are just as relevant, patients and their families are directed to seek information specific to Australia through their doctors, health care teams and IDFA.
CLICK HERE to download a PDF of the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Australasian Edition
For more information and resources, contact IDFNZ or IDFA:
Immune Deficiencies Foundation New Zealand (IDFNZ)
PO Box 75-076, Manurewa,
Manukau 2243, New Zealand
Immune Deficiencies Foundation Australia (IDFA)
PO Box 969 Penrith NSW 2751,
International Patient Organization for Primary Immunodeficiencies (IPOPI)
The International Patient Organization for Primary Immunodeficiencies (IPOPI) is an international organization whose members are national patient organizations for primary immunodeficiencies. The site provides general information on primary immunodeficiency and resource contacts for patients and professionals worldwide.
CLICK HERE to see the full list of IPOPI National Member Organizations and International Support Groups