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Immune Deficiency Foundation Publications

A Zebra Tale from the Immune Deficiency Foundation - El Cuento de Una Cebra de la Immune Deficiency Foundation
The Spanish version of an illustrated storybook written for children-young and old-living with primary immunodeficiency diseases (PI) and their families to provide hope and encouragement.

Our Immune System, 2nd Edition (Spanish) - Nuestro Sistema Inmunologico
The Spanish version of Our Immune System educates children about primary immunodeficiency diseases through illustrations. The characters explain how the immune system works and describe the treatments.

SCID: A Parent’s Guide (Spanish) - Deficiencia Inmunológica Combinada Severa (SCID)

What Does an Abnormal Screen Mean? - A Quick Guide for Parents (Spanish) - Prueba de detección de Inmunodeficiencia Combinada Severa (SCID) y afecciones asociadas con linfopenia de células T para recién nacidos

IDF Patient & Family Handbook, 3rd Edition (Spanish) - IDF Manual Del Paciente Y La Familia
This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient's condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

Table of Contents
Capítulo I El Sistema Inmune y las Enfermedades de Inmunodeficiencias Primarias
Capítulo II Agammaglobulinemia Ligada al X
Capítulo III Inmunodeficiencia Común Variable
Capítulo IV Deficiencia Selectiva de IgA
Capítulo V Inmunodeficiencia Combinada Severa
Capítulo VI Enfermedad Granulomatosa Crónica
Capítulo VII El Síndrome de Wiskott Aldrich
Capítulo VIII El Síndrome Hiper IgM Ligado al X
Capítulo IX El Síndrome DiGeorge
Capítulo X Deficiencia Subclase IgG
Capítulo XI Ataxia - Telangiectasia
Capítulo XII Herencia
Capítulo XIII Cuidado General
Capítulo XIV Terapia Médica Específica
Capítulo XV Niños, Adolescentes y las Enfermedades de Inmunodeficiencia Primarias
Capítulo XVI Los Adultos y las Enfermedades de Inmunodeficiencias Primarias
Capítulo XVII Seguros Médicos para Inmunodeficiencias Primarias: Tomando el Control
Glosario
Recursos Información Acerca de Inmunodeficiencias
Lista de Lecturas

IDF ePHR - The Electronic Personal Health Record for the PI Community

Tome las riendas de su salud con IDF ePHR.
Vaya a www.idfephr.org y seleccione Espanol en la esquina superior derecha.

IDF Video Series for Nurses available in Spanish

Serie de vídeos IDF para enfermeras: Enfermedades de Inmunodeficiencia Primaria y Terapia de Inmunoglobulina

IPOPI Booklets on Primary Immunodeficiencies

International Patient Organisation for Primary Immunodeficiencies (IPOPI) produced booklets based on IDF's Patient and Family Handbook for Primary Immunodeficiency Diseases 4th Edition. Hard copies can be ordered through the IPOPI site at www.ipopi.org.
 
Agammaglobulinemia Ligada Al Cromosoma X
Enfermedad Granulomatosa Crónica
Inmunodeficiencia Combinada Grave
Inmunodeficiencia Común Variable
Síndrome de HiperIgM
Síndrome de Wiskott-Aldrich

International Patient Organization for Primary Immunodeficiencies (IPOPI)

www.ipopi.org
The International Patient Organization for Primary Immunodeficiencies (IPOPI) is an international organization whose members are national patient organizations for primary immunodeficiencies. The site provides general information on primary immunodeficiency and resource contacts for patients and professionals worldwide.

CLICK HERE to see the full list of IPOPI National Member Organizations and International Support Groups