For people with PI, dealing with health insurance and understanding the maze of issues involved can be overwhelming. Often health insurers require additional paperwork to justify the use of the therapy prescribed. Added red tape and follow up phone calls can be frustrating. Even individuals who have adequate insurance coverage often face expensive insurance premiums or high co-payments or coinsurance.
If you are confused about insurance options, or simply lacking affordable health insurance start here to learn the basics and frequently used terms.
Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.
This is an advocacy group which helps families in the state of New York receive financial aid, nursing services and government medical services that they may be entitled to for their chronically ill child.